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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have A More In Depth Question Below.

A MyMyelomaTeam Member asked a question 💭
Commerce City, CO

I have asked this before but now it has been 15 months since the SCT and things are not getting better with fatigue, concentration, insomnia and back pain. I am only 53 but since I was diagnosed 3 years ago and I have not woken up and said boy I feel good. My confusion and concentration seem to be getting worse. My numbers from the blood tests are good but this seems crazy. They tell me “well each cancer patient is different” I went down to 24 hours a week and no help at all. Any thoughts?

June 5, 2023
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A MyMyelomaTeam Member

Not for me. On dialysis have to take a 3 hour nap when I get home. Other days I tire very quickly. I have not worked since Sept 2020

June 8, 2023
A MyMyelomaTeam Member

Hey Donald, thanks for the response. Is it still possible for you to work or not?

June 8, 2023
A MyMyelomaTeam Member

Peter,
dI had a SCT in November of 2021, my symptoms are the same as yours/ In my case, I am getting Darzalex shots once a month. For me I am also on Dialysis 3 times a week, have a bad heart and a diabetic. So it is hard to say what is the cause. When I do anything much with my upper body, I get tired very quickly. I am in remission, but the cancer and chemo has taken its toll. I used to have a great memory and concentratiom but not anymore. Sorry to hear you are having issues too.

June 8, 2023
A MyMyelomaTeam Member

Peter, I think we all have these symptoms to some degree. Probably from our maintenance medications. I am concerned about the confusion you talk about. Is it really confusion or the forgetfulness of chemo brain? We aren't supposed to give medical advice on here, but tell your oncologist about your confusion. It needs to be evaluated. Also make sure your thyroid tests are within range. Our medications can affect the thyroid. I hope they find the cause. Sending hugs and prayers 💗💕🙏

June 6, 2023
A MyMyelomaTeam Member

Hi Peter
Yes see a mm specialist if possible. I had my sct in January 2016. I have to tell you that in my case I have insomnia, severe fatigue, restless legs and neuropathy in my legs and feet and bone pain in my legs. I go to bed by 8:30 and sleep off and on most nights then wake up in the morning just as tired as when I went to bed. They call this a new normal and I hate that term.
Keep asking and complaining to your oncologist.

June 6, 2023

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