Hi Dianel,

I have stopped Revlimid after 1 and half years after Stem cell therapy due to intense adverse events. I am still in remission, and still have symptoms of neuropathy which are slowly fading. Next month I have blood samples to be collected and medical consultation in order to be re-evaluated.
Regards

I have heard that maintenance chemo is important to hopefully extend remission. I am on the same chemo (darcelex and kyprolis) for maintenence as I took to get me into remission. My doctor shared and I also read that stopping the regimine that got you into remission and restarting it again could mean it will not work again. Stay with the treatment that brought about remission.

Thank you

Hi Dianel, sorry for answering you only now. I stopped Revlimid about 3 years and 4 months. Yestarday I had to perform another myelogram and will get a PET exam next thursday for evaluation as my last blood samples were not fine (maybe I have a recidive from my MM). One thing I have to say you is that you must discuss any decision concerning soopping medication with your care physician. Best Regards

Thinking of stopping because of fatigue, sensitive skin. Have no energy. If I want to to do things it has to be before 2pm. I just crash and want to lay in bed. Is it from Revlimid? I am going to be 80 next month but others seem to be able to have energy. In the past I have been quite active and loved to swim. 🙏😔