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Dr Brushes My Questions
A MyMyelomaTeam Member asked a question 💭

I'm curious why my doctor gets offended if I complain about back pain and other myloema and chemo effects.He thinks because my levels have been brought down significantly far as light chains I shouldn't be having any complaints well that's how he brushes it off from my view.could be wrong though.

posted May 16, 2023 (edited)
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A MyMyelomaTeam Member

I kept being brushed off too. And it's only me advocating for myself. One day I verbally lost my s***. Doc tried to interrupt and I said, NO you will listen until I'm done and not interrupt! She grudgingly agreed to run tests and we found a whole bunch of issues (like I needed potassium supplements, my liver was being affected, etc.) Ask for an x-ray of your spine. You may have disc issues. You can get a steroid injection to temporarily alleviate the pain there. Or you may need surgery if they're bulging badly. I shake my head. These are all potential issues, yet docs want to focus ONLY on the cancer. Also, if you have options for palliative care thru your hospital - take it! They're who hooked me up with pain management and a counselor to help me work through a bunch of emotional stuff.

posted June 21, 2023
A MyMyelomaTeam Member

Get a new doctor

posted October 9, 2023
A MyMyelomaTeam Member

Sorry responding so late I'm not on anything for bones that I know of but I will keep an eye on my calcium levels they're always in normal range though I take dex with valcade bi weekly

posted June 13, 2023
A MyMyelomaTeam Member

Get a new doc and check into palliative care doc. They are so helpful

posted May 17, 2023
A MyMyelomaTeam Member

Don’t feel bad about questions I have been brushed off too. We are only trying to find out what’s going on and how to keep control of our situation.
So stay strong, and keep pushing forward on this journey.

posted May 16, 2023

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