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Dexamethasone Reaction?
A MyMyelomaTeam Member asked a question 💭

I take 16 mgs of Dexamethasone once a week during Chemo.
It literally sets my face on fire and I look like I have an incredible sunburn. It truly hurts and my skin on my face is cracking. (Won't even start on the no sleeping for 3 days).

Oncologist won't take me off of it as my MM is responding well to the Revlimid, Dexamethasone, bortezomib injections and Acloyvir.

Is there a special lotion or cream I can use to help with this reaction?

posted April 25, 2023
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A MyMyelomaTeam Member

Imy,
When I gave my mom Dex for the first time she did not nap all day and slept maybe 3 hours. She was supposed to take it everyday. The next day I cut the pill in half! Much better! Since she was almost 91 years old, I figured it wasn’t good for her not to sleep. The Dex seemed to help with pain by reducing the tumor burden. She was on hospice at the time.

posted April 26, 2023
A MyMyelomaTeam Member

When using dex common to have trouble falling asleep although mine only lasts on e night. For me used with daratumamab

posted April 29, 2023
A MyMyelomaTeam Member

Paula, that was hard to have your Mom go through that🙏💗

posted April 26, 2023
A MyMyelomaTeam Member

Hi Amy, Exederm cream might help as well. But I recommend you go see a dermatologist to make sure it's not something that could get worse🥰

posted April 26, 2023
A MyMyelomaTeam Member

Aveeno Calm and restore cream might help. I'm hoping they let you lower the dose once your myeloma is well controlled 💜

posted April 26, 2023

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