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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Fort Frances, ON
March 25, 2023
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A MyMyelomaTeam Member

I have dry mouth all day, I also have running nose when I eat, food taste bad now I lost 20 lbs. but I could stand to lose another 30 so I'm not worried. I started physical therapy and that has really helped a lot with neuropathy in my feet, I still have pain but the walking on pillows feeling is gone, and my balance is way better.

March 27, 2023
A MyMyelomaTeam Member

Ken56 yeah I feel like I am walking on pillows too and I wear compression socks which helps a bit with the swelling. I am also doing physiotherapy too strengthen my muscles and too improve my balance and I downloaded some exercises from this site too help strengthen my muscles.

March 27, 2023
A MyMyelomaTeam Member

No, i have more dry mouth and use a mouth kote spray. Especially at night.

March 27, 2023
A MyMyelomaTeam Member

Wendell - like most on here, I get dry mouth and am now addicted to spearmint lifesavers! :) Runny nose has surfaced, as well.

I'm taking 1200mg gabapentin 3x daily for the neuropathy. No longer on maintenance meds, because they made the neuropathy worse. It spread from my feet & lower legs to my hands and my lips and tongue.

I have found that prayers have helped me immensely as I experience the side effects. The pain from the back surgery is not as frequent as before.

March 26, 2023
A MyMyelomaTeam Member

Just the opposite. Dry mouth, especially at night.

March 25, 2023

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