Does Anyone Have Al- Amylodosis. I Might Have Spelled It Wrong. | MyMyelomaTeam

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Does Anyone Have Al- Amylodosis. I Might Have Spelled It Wrong.
A MyMyelomaTeam Member asked a question 💭
posted March 21, 2023
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A MyMyelomaTeam Member

Sorry I don't know what this is, have you googled it? or talked with your oncology team.

posted March 22, 2023
A MyMyelomaTeam Member

No. I haven't heard of it.

posted March 22, 2023
A MyMyelomaTeam Member

Hi Cynthia, my myeloma was diagnosed because I had an Amyloid tumor in my mouth. It’s never been made very clear to me if I have both Amyloidosis and Myeloma. From what I understand, the amyloid tumor formed because of the Myeloma. I was told it’s the same treatment no matter what I have. I sought the opinion of 5 or 6 doctors, and no one has given me a straight answer, only that it’s the same treatment. I have been on Dexamethasone, Velcade and daratumumab, first weekly for 16 weeks and now the same regimen monthly.. good luck ♥️Barb

posted March 22, 2023

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