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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Al- Amylodosis. I Might Have Spelled It Wrong.

A MyMyelomaTeam Member asked a question 💭
Augusta, GA
March 21, 2023
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A MyMyelomaTeam Member

Sorry I don't know what this is, have you googled it? or talked with your oncology team.

March 22, 2023
A MyMyelomaTeam Member

No. I haven't heard of it.

March 22, 2023
A MyMyelomaTeam Member

Hi Cynthia, my myeloma was diagnosed because I had an Amyloid tumor in my mouth. It’s never been made very clear to me if I have both Amyloidosis and Myeloma. From what I understand, the amyloid tumor formed because of the Myeloma. I was told it’s the same treatment no matter what I have. I sought the opinion of 5 or 6 doctors, and no one has given me a straight answer, only that it’s the same treatment. I have been on Dexamethasone, Velcade and daratumumab, first weekly for 16 weeks and now the same regimen monthly.. good luck ♥️Barb

March 22, 2023

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