Does Anyone Have Al- Amylodosis. I Might Have Spelled It Wrong.
Sorry I don't know what this is, have you googled it? or talked with your oncology team.
No. I haven't heard of it.
Hi Cynthia, my myeloma was diagnosed because I had an Amyloid tumor in my mouth. It’s never been made very clear to me if I have both Amyloidosis and Myeloma. From what I understand, the amyloid tumor formed because of the Myeloma. I was told it’s the same treatment no matter what I have. I sought the opinion of 5 or 6 doctors, and no one has given me a straight answer, only that it’s the same treatment. I have been on Dexamethasone, Velcade and daratumumab, first weekly for 16 weeks and now the same regimen monthly.. good luck ♥️Barb
In Addition To Kappa Light Chain MM, I’ve Been Diagnosed With AL, Light Chain Amiloidosis. Does Anyone Else Have This Additional Condition?
What Is A Amylodosis Biopsy For
New To MGUS / Anyone Have A PET SCAN And FAT PAD BIOPSY?
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