Do People With MGUS Sustain Fractures? Is Osteoporosis + MGUS A Precursor To Advancement To MM? Hemangiomas On Spine - Be Concerned? | MyMyelomaTeam

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Do People With MGUS Sustain Fractures? Is Osteoporosis + MGUS A Precursor To Advancement To MM? Hemangiomas On Spine - Be Concerned?
A MyMyelomaTeam Member asked a question 💭

I currently have a cracked rib...we don't know how it happened. The rib is not hurting...just showed up on a shoulder and thoracic spine study because I have chronic, unexplained shoulder pain.

I have 2 hemangiomas on my thoracic spine and I am having pain and BURNING in my thoracic spine . I've been told that they are not of a concerning nature...BUT anything growing on my spine concerns me!

posted February 23, 2023
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A MyMyelomaTeam Member

Carla2;
It is better to be tested for MM before any invasive surgery. My cousin suffered through multiple back surgeries only to find cancer was what was causing the problem. Blood tests and bone marrow biopsy.

posted February 25, 2023
A MyMyelomaTeam Member

I have MGUS. I was diagnosed November 2020. I have broken my ribs numerous times for the last 25 years. The last 2 breaks were by the tiniest bit of pressure. I bent over a large trash bin and my ribs cracked. I have severe osteoporosis in my spine and hips. I was taking a high corticosteroid which causes osteoporosis. I may have been genetically predisposed also. Google and find the best spine surgeon in your area. Even outside your area. You deserve to be pain free.

posted February 24, 2023
A MyMyelomaTeam Member

Greetings from Alaska after being diagnosed with MGUS I was diagnosed with osteopenia precursor to osteoporosis. I was experiencing low back pain as well as pain in the thoracic area I had taken physical therapy thinking it was probably muscular then I fell and broke a bone in my back that’s when it was discovered that my T6 had collapsed and I had lost 40% of my height it was still three months before I was diagnosed with multiple myeloma. I believe they say it’s less than 1% A year the transition from MGUS to multiple myeloma I’m so special I was in that less than 1%.I have seen a neurosurgeon four times now to look at my back and see how it’s doing since I’ve been on the bone agent. I would suggest getting a second opinion and seeing a neurosurgeon because if you need surgery that’s who you will need to see especially in the thoracic area. I hope this information helps let me know how things are going I’m with you anything growing on my spine I want looked at and not just watched. God bless you and your family.

posted February 23, 2023
A MyMyelomaTeam Member

Will do! Thank you so much! Have a great Saturday!

posted February 25, 2023
A MyMyelomaTeam Member

I agree as soon as possible

posted February 24, 2023

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