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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Colorado Springs, CO

For the first time in almost 8 years on Revlimid; I have low platelets. Has anyone been able to raise them up with diet?

February 2, 2023
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A MyMyelomaTeam Member

Since my remission from Car T red blood cells have been low along with platelets. Levels have increased along with IgG.

March 27, 2023
A MyMyelomaTeam Member

2021.
...
Is there a natural way to increase platelet levels?
Folate (vitamin B9)-rich foods such as green leafy vegetables, beans, peanuts, liver, and seafood.
Foods rich in vitamins B-12, C, D, and K, such as beef, liver, chicken, fish, seafood, citrus, tomatoes, potatoes, egg yolks, and cereals.

February 2, 2023
A MyMyelomaTeam Member

You can google it I did last year but I don't remember all the different foods but I did get mine's to come up I think it was black eyes peas

February 2, 2023
A MyMyelomaTeam Member

My husband is in msk after sct and just got a transfusion of platelets- but green leafy veggies and eggs are supposed to help

February 2, 2023
A MyMyelomaTeam Member

cytokine release syndrome comes from the destruction of the myeloma cells by the Car T Cells. I got it the second week of Car T at the hospital. I had high fever and was given antibiotics. Yes, I am 25 months into remission. My Oncologist had told a couple of months ago that without Car T Therapy I would be dead by now. As I have said before in some of my other answers, I had no choice.

April 1, 2023 (edited)

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A MyMyelomaTeam Member asked a question 💭
Newfoundland, Canada

A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

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