I’m only beginning my journey. I have anemia and some numbers are higher, but no other symptoms. I go to a naturopathic type of clinic. That doctor put me on three fish oil capsules per day, as a clot preventative. Since we know clots can occur, I might as well play it safe. I don’t know if this is helpful once you already have clots, but perhaps it will help someone.

I had a blood clot in the back knee, started on Eliquis but also had the gene blood test. I had 2 negative but one postive so needless to say I will be on Eliquis 2.5MG twice a day for the rest of my life. Also right at the get go of being diagnosed with MM my Oncologist said at my age I should never take Revlimid. She said It can give you blood clots at my age. I think I was 77 at the time.

I had clots move from my legs to my lungs years before I was diagnosed with MM.
I waited too long to get looked at to the point I was having chest pains.
I went to the emergency room and was given a shot in the stomach. I don't remember what it was but I had instant relief. Hospitalized for a few days and put on Xarelto. I was taken off it after I left my truck driving job. We felt the long sitting hours might have caused it. The clots started in the back of my knees.

I pretty sure revlimid and possibly other drugs we myeloma patients take can cause clots. I've been on Xarelto since I started revlimid.
Maybe they found only minimal clots and are confident with their treatment.
Has his breathing improved?

Charlie

I should have added that they put him on Eloquis. His breathing had improved, but now it is worse and worse. Bending over to tie his shoe can take a few minutes to recover. And just walking for awhile takes his breath away. Had scans, but no clots are seen????