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I had a second bone marrow biopsy a little over two weeks ago. I have 9% cancer cells in my bone marrow, 2.4 M-Spike, no C.R.A.B. and only two of the 4 FISH. However, my Kappa/Lambda FLC Ratio jumped up from (Oct 2022) 78.6 to 140.8 but my Kappa did not go up, so the doctor thinks I have an infection or auto immune issue. I have been diagnosed as Smoldering Multiple Myeloma since last February. The doctor says he is guessing (he emphasized guessing) I have about two years before needing to start… read more
Hi Ricky - Since your have time, what natural supplements and diet changes are you looking into?
Are you taking C3 Curcumin? I read an article from PubMed describing it as Proteasome Inhibitor - same as Velcade. Probably no where as strong but still, it’s able to kill cancer cells. At my Story @A MyMyelomaTeam Member, there’s a link to the NIH Study that concluded it was effective in getting to and keeping in remission. It can’t hurt to try and it may help.
Thanks to Induction and a short term Maintenance, I’m MRD- with no MSike, No SCT. I’m on Monitoring with No MM Meds (as per the MRD-SURE Report).
I Started at Stage 2, IgA, 80% bad plasma and one high risk of t(4,14). I was talking C3 Curcumin all through treatment and continue with 8 grams daily. Before treatment I had found 3 Case Studies that said C3 Curcumin helped kill MM.
I can’t prove that it’s helping but there plenty of Case Studies and Stories that says it does. My case is quite out of the Norm that my Doc has seen - there’s got to be a reason. I’m betting on the C3 Curcumin has been helping the Induction Meds. I was too far gone to have ever gotten through this without the Induction Meds but my response was so quick that I didn’t need the SCT or any ongoing Maintenance.
In your case of having 2 years, just maybe C3 Curcumin can prevent it from ever progressing.
@Domonic is a reference to his very healthy diet - worth a look. I’m not on his diet yet but I’ve improved my diet - all candy, ice cream, and sugar sweets are out and I’m getting plenty of exercise daily.
All the Best in preventing it’s future progression.
I would go with your specialist. Eating well and exercise may help delay progression. Keeping at your idea weight. Look into supplements like curcumin, vitamin d, and calcium. Check with your doctor first💕🥰
Hi Samar - I take 8 grams daily. I recommend at least 4 or more upto 8 max. Details are at my Story @A MyMyelomaTeam Member
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AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.
hi larry2 , can u told me about the c3 curcumin , how many gram a day to u take,I f u can send picture of it,thanks
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