Hi Bill - if you're in complete remission, its old news to stay on MM Meds like Revlimid forever. Look into getting a clonoSEQ MRD test. If you're 10 -6 Negative (no cancer per million cells), then going on MRD-SURE Monitoring is a very viable and preferred place to be. At my @A MyMyelomaTeam Member Story there's a link to Dr. Costa's Video. He did the MRD-SURE Case Study. In his Video, he stresses the need to get off MM Meds when 10 -6 Negative. There's additional Links to other related items. I'm MRD Negative, off All MM Meds for the past 7 months. Excellent Labs and quarterly MRD tests that are all Negative and no MSpike. I started at 80% bad plasma and 3.1 MSpike. Induction and maintenance, without a SCT got me clear in 7 months.

I also take 8 grams of C3 Curcumin in an effort that it will help keep me in remission. My Story has Links to a NIH Study and reference to Articles that show its value. I found 3 Case Studies prior to starting Induction and was taking 4 grams daily all through Induction and then 6 grams daily during maintenance and recently upped to 8 grams. Doc was fully aware and was pleased that I was taking it.

I also had one high risk of t(4,14). MRD Monitoring is viable with zero and one high risk factor, according to the MRD-SURE Case Study Report.

All the Best - Larry2

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I was on Revlimid for 8 months and then my Mspike was below 1.0 to .0003. My doctor at Waterman took me off the medication and 3 other meds as well. when my Mspike is 1.0+ I will go back on the medication. Take care everyone and stay healthy as you can.

We are all different so nobody really knows. Revlimid is accumulative over the years and many of us have our dosage reduced to better tolerate it. I have been on it 5 years and are presently in 5mg. Again, the next protocol will depend on genetics and other things. We really are so different.

I take PhysicianNaturals C3 Curcumin (PN). I've been testing Dr's Best C3 Curcumin. Though Dr's Best is a little smaller and easier to swallow, it gives me very bad indigestion when I take all 8 at once. I may split it across the day or simply stay with PN brand. Another member has been taking Dr's Best but reported damaging his esophagus - I believe he was taking 8 at a time as well and that he's cut back to 6 per day.

My Story has Links to both.

I plan to look into other C3 options - there's a few - Liposomal C3 Curcumin and a new version as mentioned by Patricia7 (I believe), both requiring less per day. I'll report to my Story once I've tested both.