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Just Started Cycle 7 Of 10mg Of Revlimid 21 On And 7 Off. Muscle Pain And Stiffness Are Awful.
A MyMyelomaTeam Member asked a question 💭

Have you experienced this? If so what did your Dr do? I was on 100 mg of Thalomid for almost a year and did great until it didn’t. Heart rate dropped to 42, thus the switch to Revlimid. Between the diarrhea and the awful full body pain and stiffness I just feel awful. I will be discussing with my DR. I had hoped it would get better but to no avail. I also do Darzalex monthly. IVIG monthly and Zometa monthly. Could the stiffness and soreness be from IVIG? Would love your feedback. I’m ready to… read more

posted December 18, 2022
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A MyMyelomaTeam Member

I was having the same problems with Revlimid my onc starded my treatment with Darzalex, Dex, and Valcade once a week. I also have Zometa every 3 months for bone strengthening. I've been on this treatment for 9months now and my numbers are very good and I'm feeling a lot better

posted December 27, 2022
A MyMyelomaTeam Member

I recently got off of revlimid because of those same issues. I complained to my oncologist but he ignored me. So I got a second opinion from a specialist. She took me off for two weeks and the diarrhea cleared up and the stiffness is much less. So the specialist is now my oncologist and she took me off revlimid altogether. I feel much better. I'm doing Darzalex faspro weekly and vecade weekly.
I did some research on the revlimid website and long term affects of revlimid are horrible. I told her my concerns and no more revlimid. Make sure your doctor is treating you and not just the MM.

posted December 23, 2022
A MyMyelomaTeam Member

I have so much trouble just getting into. Rolling over took so much effort. I could not turn around and to the back seat of our truck with out Severe pain.i was test for Several things. One was lyroid. My lyroud numbers were very high. Iam on levothyroxine. I can move without pain. So maybe go have your thyroid checked hopefully that's the cause of a pain. I am back on 5 mg the diarrhea still is a problem, I can't go anywhere without a bathroom. That is just revlimid. Good lucky.

posted December 22, 2022
A MyMyelomaTeam Member

Try b12 vitamin, for some people work, some don’t, best

posted December 20, 2022
A MyMyelomaTeam Member

So sorry to hear that your having potential issues with Revlimid. I have been lucky-I seem to tolerate it pretty well. Aside from morning fatigue. I would talk to your team...The best!

posted December 18, 2022

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