Get a clonoSEQ test - preferably from a Bone Marrow Biopsy. If you’re Negative at 10 -6 (no cancer per million cells), lookup the MRD-SURE Report (web search) and discuss with your Doc about being on Monitoring without any MM Meds. My Story @A MyMyelomaTeam Member has a link to a video by Dr Costa where he explains the benefits of being off All MM Meds if you’re 10 -6 Negative. Secondary cancers is one of many reasons to be get off All MM Meds, if you qualify. Avoiding Jaw bone death (has happened to many on this forum) is another. There’s also references at my Story as to the benefits of C3 Curcumin. See the link to the New NIH Study released this year about C3 Curcumin.

In many cases, the practices of the “standard of care” are keeping people on MM Meds far too long. New Case Studies released just this year are proving Less is Best, if you’re in Complete Remission at 10 -6. This year, there are posts of More and More People that are Transitioning to just Monitoring at their Doctor’s suggestion.

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A MyMyelo...

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My hubby n 25. The doc went down to 12. Crabby. Night sweats. Not sleeping. Eating too much. 12 is ok for him.

You're All Amazing Individuals that help others in so many ways 🙏👍

Hi…I’m about 2 1/2 years since diagnosis. I started with 25 mg of Remlivid with Dex and Valcade. The Valcade gave me neuropathy particularly in the toes. Stopped Valcade about 6 months ago and unfortunately still have neuropathy. I don’t recall the dosage of the Dex but it was not fun. After a stem cycle transplant in February 2022, I am on maintenance Remlivid only…No Dex. My maintenance dosage started at 10 mg and I recently change to 5 mg. Meeting with oncologist on Wednesday for blood work, etc. and to see how the 5 mg dosage is working. Hope this helps.
Take care !