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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 19, 2022
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A MyMyelomaTeam Member

The 7 days off is to give your bone marrow a chance to recover. Fatigue is the number one complaint I hear from people on this site. Pain and neuropathy are tied for second

November 20, 2022
A MyMyelomaTeam Member

Myeloma itself makes you fatigued. Revlimid also lowers some blood counts, therefore more fatigue. I was told the week off was to give your body some recovery time

November 19, 2022
A MyMyelomaTeam Member

Get a clonoSEQ test - preferably from a Bone Marrow Biopsy. If you’re Negative at 10 -6 (no cancer per million cells), lookup the MRD-SURE Report (web search) and discuss with your Doc about being on Monitoring without any MM Meds. My Story @A MyMyelomaTeam Member has a link to a video by Dr Costa where he explains the benefits of being off All MM Meds if you’re 10 -6 Negative. Secondary cancers is one of many reasons to be get off All MM Meds, if you qualify. Avoiding Jaw bone death (has happened to many on this forum) is another. There’s also references at my Story as to the benefits of C3 Curcumin. See the link to the New NIH Study released this year about C3 Curcumin.

In many cases, the practices of the “standard of care” are keeping people on MM Meds far too long. New Case Studies released just this year are proving Less is Best, if you’re in Complete Remission at 10 -6. This year, there are posts of More and More People that are Transitioning to just Monitoring at their Doctor’s suggestion.

December 11, 2022
A MyMyelomaTeam Member

Thank you for the Hug DB Scott.

November 23, 2022
A MyMyelomaTeam Member

My creatinine seems to be always a little high.

November 20, 2022

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