M Spike Rising | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
M Spike Rising
A MyMyelomaTeam Member asked a question 💭

When has your oncologist changed your treatment when your m spike rises. Mine started in July 2022 to .05 now in October 2022 it is .10
I contacted mt oncologist about this after I received the lab results but I haven’t received a response from him yet
My oncologist office has grown so large that I feel like I am just a number on a conveyor belt. Even though they are a hematology oncology office, I feel they give all their priority to breast and colon cancers. Don’t get me wrong they are… read more

posted October 8, 2022
View reactions
A MyMyelomaTeam Member

Hi Cat - if you do take any Darzalex product your Lab must do a special test to account for the false MSpike of 0.1 to 0.2. It’s easy but most do not by default.

Take a look at my Larry2 Story about the New NIH Study that may help keep you in remission. They did a 6 year Study and proved that C3 Curcumin at 8 grams at day had a real benefit of preventing a relapse.

All the Best

posted October 8, 2022
A MyMyelomaTeam Member

My spike has slowly risen to .08 and has fluctuates between .07 and .08. With that said my k\l ratio is still kind of ok though not normal. I have no other symptoms of anything yet. Its been 5 1/2 yrs since first treatment. First treatment took place when my spike was 2.2.

posted October 8, 2022
A MyMyelomaTeam Member

HI Cat!

I love Dr. Peterson at SE NE Cancer Center. I have never felt like a number with him or any of his staff. And he never hesitates to confer with someone more expert then he might be. He'll be retiring in a few years I imagine but I'm confident he will make sure I am still well cared for.

I am on monthly deratumumab infusions and am doing fabulous. I'd consider calling his office if I was you.

WE MUST DO LUNCH AGAIN! It's been way too long.

Thinking of you,
Meylonie

posted October 8, 2022
A MyMyelomaTeam Member

I agree with Peter. A myeloma specialist is a must with this disease. My doctor did tell me they don't go by just one lab. He said a rise in my m spike did not warrant a medication change. They look at the entire myeloma panel. My m spike went up to 0.4 after one of my Covid shots. It scared me. I know how you feel. But Emory rechecked it and it was fine. Sending hugs and prayers 💕

posted October 8, 2022
A MyMyelomaTeam Member

I would find the best MM specialist who then can drive your local oncologist to react. They have more clout and by moving to a specialist it will make them pay closer attention to you in a bigger office. Can’t give medical advice

posted October 8, 2022

Related content

View All
M-Spike
A MyMyelomaTeam Member asked a question 💭
Rising M Spike
A MyMyelomaTeam Member asked a question 💭
What Is A "good" Or Manageable M Spike?
A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in