Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question πŸ’­
Gilbert, AZ
July 25, 2022
 · 
Reactions
A MyMyelomaTeam Member

I think you should get a bone marrow biopsy first and then go from there second will be the stem cell transplant.

July 25, 2022
A MyMyelomaTeam Member

The FISH analysis of my first bone marrow biopsy (Oct 2020) was never seen by my hematologist. I 'found' it when looking for recent blood work on LabCorp website. I have a p17 deletion which puts me in a high risk genetics category. This was done as I was being treated for a plasmacytoma but I didn't find it after my stem cell transplant in Feb 2022. I was considered MGUS and I was going every 3 months for bloodwork. My Jan 2021 bloodwork came back fine. My April 2021 bloodwork I had become full blown MM. That BMB showed nearly complete obliteration of normal blood cell formation. It stunned me that I had gone from MGUS to Stage 2 MM in 6 months. I will always wonder if they would have started treating me earlier if they'd had the results of the FISH analysis. You must stay on top of EVERYTHING. I am a Nurse Practitioner and I still find it very challenging to keep everything aligned.

July 26, 2022
A MyMyelomaTeam Member

No it's not in your mind. I am glad you are getting a second opinion. πŸ’—πŸ™

July 25, 2022
MyMyelomaTeam

Smoldering multiple myeloma (SMM) patients typically do not receive stem cell transplants. Treatment for SMM often involves monitoring and managing the condition rather than aggressive interventions like stem cell transplants, which are more commonly used for active multiple myeloma.

For more detailed information, you can Show Full Answer

Smoldering multiple myeloma (SMM) patients typically do not receive stem cell transplants. Treatment for SMM often involves monitoring and managing the condition rather than aggressive interventions like stem cell transplants, which are more commonly used for active multiple myeloma.

For more detailed information, you can refer to the resources provided in the knowledge base:
- [Smoldering Multiple Myeloma: Your Guide](https://www.mymyelomateam.com/resources/smolder...)
- [Stem Cell Transplants for Multiple Myeloma: Your Guide](https://www.mymyelomateam.com/resources/stem-ce...)

July 14, 2024
A MyMyelomaTeam Member

I am amazed that you can walk a mile everyday while being 50% fatigued all the time but you have a great attitude so keep it up and good luck going forward.

January 27, 2023

Related Questions

View All
A MyMyelomaTeam Member asked a question πŸ’­
Rhinelander, WI

A MyMyelomaTeam Member asked a question πŸ’­
West Des Moines, IA

A MyMyelomaTeam Subscriber asked a question πŸ’­

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In