Do Smoldering Myeloma Patients Ever Get Stem Cell Transplants? | MyMyelomaTeam

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Do Smoldering Myeloma Patients Ever Get Stem Cell Transplants?
A MyMyelomaTeam Member asked a question 💭
posted July 25, 2022
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A MyMyelomaTeam Member

I think you should get a bone marrow biopsy first and then go from there second will be the stem cell transplant.

posted July 25, 2022
A MyMyelomaTeam Member

The FISH analysis of my first bone marrow biopsy (Oct 2020) was never seen by my hematologist. I 'found' it when looking for recent blood work on LabCorp website. I have a p17 deletion which puts me in a high risk genetics category. This was done as I was being treated for a plasmacytoma but I didn't find it after my stem cell transplant in Feb 2022. I was considered MGUS and I was going every 3 months for bloodwork. My Jan 2021 bloodwork came back fine. My April 2021 bloodwork I had become full blown MM. That BMB showed nearly complete obliteration of normal blood cell formation. It stunned me that I had gone from MGUS to Stage 2 MM in 6 months. I will always wonder if they would have started treating me earlier if they'd had the results of the FISH analysis. You must stay on top of EVERYTHING. I am a Nurse Practitioner and I still find it very challenging to keep everything aligned.

posted July 26, 2022
A MyMyelomaTeam Member

No it's not in your mind. I am glad you are getting a second opinion. 💗🙏

posted July 25, 2022
A MyMyelomaTeam Member

I am amazed that you can walk a mile everyday while being 50% fatigued all the time but you have a great attitude so keep it up and good luck going forward.

posted January 27, 2023
A MyMyelomaTeam Member

Yes, back in April my BMB was 11%

posted July 26, 2022

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