I think you should get a bone marrow biopsy first and then go from there second will be the stem cell transplant.
The FISH analysis of my first bone marrow biopsy (Oct 2020) was never seen by my hematologist. I 'found' it when looking for recent blood work on LabCorp website. I have a p17 deletion which puts me in a high risk genetics category. This was done as I was being treated for a plasmacytoma but I didn't find it after my stem cell transplant in Feb 2022. I was considered MGUS and I was going every 3 months for bloodwork. My Jan 2021 bloodwork came back fine. My April 2021 bloodwork I had become full blown MM. That BMB showed nearly complete obliteration of normal blood cell formation. It stunned me that I had gone from MGUS to Stage 2 MM in 6 months. I will always wonder if they would have started treating me earlier if they'd had the results of the FISH analysis. You must stay on top of EVERYTHING. I am a Nurse Practitioner and I still find it very challenging to keep everything aligned.
No it's not in your mind. I am glad you are getting a second opinion. 💗🙏
I am amazed that you can walk a mile everyday while being 50% fatigued all the time but you have a great attitude so keep it up and good luck going forward.
Yes, back in April my BMB was 11%