I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight. | MyMyelomaTeam

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I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight.
A MyMyelomaTeam Member asked a question 💭

Going to have my stem cell transplant in 3/12 weeks. I will be hospitalized for 2 to 3 weeks I’m told. I’ve lost 30 plus pounds.
Will I be losing more weight? Will I gain weight months after my transplant? Should I get rid of my old me clothes? I don’t want to keep buying clothes. Please help. Thanks in advance for answering my questions. I truly appreciate it.
Ps I was on Revlimid , Velcade, Darzalex Fastpro and Dexamethasone.

posted June 19, 2022
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A MyMyelomaTeam Member

Hi Angela, Right before the transplant they give us very strong chemo which leads to complete hair loss and loss of many taste buds, among other things. Following the transplant almost no food tasted good and the only thing I could stomach was a chocolate malt. I lost about 15 pounds in the first couple of months following the SCT. Within 3 0r 4 months my hair started to come back, and about 6 months later my taste buds started to come back. I eventually gained all the weight back and now would like to lose a little again. Hope this helps.

posted June 19, 2022
A MyMyelomaTeam Member

During my cell treatment I lost almost 20 pds but a yr.later I've gain it all back

posted June 22, 2022
A MyMyelomaTeam Member

I was diagnosed December 2019. Had 24 chemo treatments, 10 radiation treatments and a SCT May 2020! I lost about 40 lbs during this whole process. Most of it was the 20 days I spent in the hospital for the SCT. Food just didn’t taste very good so I ate very little. I have gradually gained about half of that back, so I am just about where I need to be! I hope to stay right where I am. I feel much better!

posted June 20, 2022
A MyMyelomaTeam Member

My husband was and is on Darzalex, Revlimid and dex. He lost 40 pounds the first 8 months. He’s been on maintenance therapy 4 a year and a half and has gained 10-15 lbs back. Which for him is a good weight. Can’t tell you about the sct weight loss or gain.

posted June 19, 2022
A MyMyelomaTeam Member

I lost weight with transplant. About 18 pounds. I personally wouldn't get rid of my old clothes yet. Hopefully your weight will stabilize when you get on maintenance. Prayers you do well with transplant 💕🙏💗

posted June 19, 2022

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