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Revlimid
A MyMyelomaTeam Member asked a question 💭

Do any Part D drug plans cover all of the cost of Revlimid? Which Part D drug policies pay the most on Revlimid in Colorado?
Thank you
Rock Obenchain

posted June 8, 2022
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A MyMyelomaTeam Member

I'm in Colorado. I haven't found substantial coverage through Part D Medicare for the copay for Revlimid. The least expensive is around $11,000 a year for lenalidamide, the generic. I have contacted Bristol Meyers for assistance and haven't received anything yet. All the non-profit organizations I'm eligible for have closed assistance for revlimid for right now. In the meantime, I order it from India for $400 for a year's supply. The generic sold in the US is manufactured in India anyway. OK, the good news is that the federal government has issued a cap on the out of pocket payments in the Inflation Reduction Act which will mean that the maximum out of pocket for those of us on Medicare Part D will be around $2,000 per year ... beginning in 2025.

posted January 27, 2023 (edited)
A MyMyelomaTeam Member

The cancer nurse navigator at the cancer center helped me get a grant for Revlimid. It was $23,000/month and I was on it for 6 months prior to a stem cell transplant.

posted June 12, 2022
A MyMyelomaTeam Member

I also posted this on another question:
When I was on Revlimid, the cancer center where I go helped me get a grant so that I paid $0. Now I’m on Darzalex FasPro and it’s also expensive, but since it’s given at the hospital, the billing is different and I pay zero. Perhaps if more patients requested a different drug, the makers of Revlimid would stop the price gouging. I think doctors use Revlimid as the go-to drug for MM without even thinking. When push comes to shove and a patient can’t take it (like me), they tell you not to worry that there are several alternatives!! Ask for an alternative if the price has become prohibitive. They will either help you find a grant or give you a different drug.

posted June 28, 2023
A MyMyelomaTeam Member

Interesting. I have found the dosage does not effect the cost. My copay has been 400 per month for either 5mg or 10 mg for 21 days a month. That was before I got VA to give me community care.

posted May 8, 2023
A MyMyelomaTeam Member

I am too young for Medicare and when I asked the pharmacy about grants they said there are no grants available right now. My co pay thru my insurance for generic Revlimid is only $85, so not to bad per month. There is also co pay assistance but my dosage doesn’t qualify in California.

posted May 2, 2023
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