For those who have completed a stem cell transplant, I would love your wisdom. What advice would you share, what items would you take, what preparations would you make leading up to and during the procedure? I am about 6 weeks out before stem cell.
Hi. I brought a very cozy throw blanket so happy I did bc I had mine done in Feb 2020 and I was freezing. Got the weirdest chills in my bones from head to feet. Warm clothing when freezing and cooler for when I got the sweats.
For the strange taste in my mouth Lemon hard candies relieved the dry mouth and bad taste. I tried other flavors but the lemon ones really cleaned my pallet.
As far as toiletries go I showered with my own stuff. I liked the scents whe I bought them bf SCT and left it behind as it didn’t agree w me. Maybe bring shampoo and conditioner you’ll never use again. Trial sizes bc your hair will fall. Shower gel, again bring something that’s aromatherapy type but go light. Scrubby pad of your own.
Moisturizer that you like unscented.
I brought a lot of underwear. Believe it or not some shirts that were nursing shirts. Made it easier for Medical team to access the port and my chest. I did shower and wear super comfortable clothing every day. For my mind - I had to shower get dressed and even put some makeup on. ( I missed a few showers but that was in the beginning)
Bring Flip flops for the shower. Protect your body from germs on the shower floor. Make sure they are non slip!
I brought my Bible. Barely read it just comforting knowing it was with me.
I was in the hospital for 16 days.
I’m praying for you. Please keep us posted.
The sct is easy but the chemo will be hard on you, you will probable be weak for a while.
I walked the halls of the hospital unit for the first three days and exercised. I have no solution for the food problem unless someone can bring you some homemade food, like chicken broth, applesauce.
I tried to wash up once a day and I never needed help getting to the bathroom myself but I was exercising before I went in.
You will be very weak when you leave the hospital, but it took me a couple of months to start to feel my strength come back. It will.
Cut your hair very short, mine wasn't long. A nurse came around to cut it maybe after a week, but it was on everything by then. It is just easier to cut it.
I did not loose my eyebrows or eyelashes, but some pubic hair.
I supposedly am in remission. I needed to start physical therapy again to strengthen my back muscles and legs. Today ,I will mow the lawn and cook for grandchildren and I will need to rest. I am 71 and 5 months out of my sct.
You will be fine, just give it time .
Get a lot of rest prior to the SCT. Eat healthy food. After the transplant you will probably have little or no appetite. Don't get stressed out. Better days are coming soon.. Say some prayers. Good luck and prayers are on the way.
Bring half zip shirts so the nurses can access your port. Also ask for the ktrol (I think that’s the name of it-for nausea). That really got me through it and made it so I could eat. Shave your head after the chemo, so you don’t find hair all over when it falls out. Bring a good baseball cap to wear. I hope it goes well for you!!