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Caregivers During ASCT

Caregivers During ASCT

Greetings all,
I hope everyone is well. I was wondering if anyone could share their experience with ASCT. Specifically, did anyone do the stem cell transplant experience without a caregiver in the hospital with them?
Thanks

posted 6 months ago
A MyMyelomaTeam Member said:

MD Anderson where my husband did Stem Cell would not allow him or anyone to go through stem cell without a caregiver, either spouse or paid.

edited, originally posted 6 months ago
A MyMyelomaTeam Member said:

Same I had to have someone with me 24/7. I went to doctors office 7 days a week for about 6 weeks. All this was required by the doctor as your condition could change quickly.

posted 6 months ago
A MyMyelomaTeam Member said:

No it was a requirement you had caregiver. I’m a widow I had my best friend.

posted 5 months ago
A MyMyelomaTeam Member said:

I would definitely recommend a caregiver. My SCT was done at MD Anderson and it was a must for them. I was outpatient and it went very well. I was driving back to FL after three weeks! However, my sister came to TX to be my caretaker and was invaluable. When the chemo hit, it hit hard. She helped me stay on schedule with my meds and also helped prepare meals which I felt like I could eat. I think the most important part of her role was motivating me to get up and move right after the transplant even just to walk around the kitchen. It’s an intense process and your body just sort of gives out energy wise. It is important to fight the exhaustion and keep moving as this will quicken your recovery. Also, take your nausea meds around the clock. Do not wait for symptoms to set in because if you miss the medication time window it can really make things worse. I needed a combination of 3 nausea meds to control things. Be open with your doctors about any discomfort, nausea or pain you are having and do not be afraid to advocate for yourself. That is also where your caretaker has a big role. Good luck and please let us know how you are doing! 💕

posted 6 months ago
A MyMyelomaTeam Member said:

The process is daunting but well worth it. I was fortunate as I breeze through the process with relatively little side effects except fatigue. I did not have to be hospitalized nor did I get sick. Fortunate beyond belief. Best wishes to you

posted 6 months ago
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