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Neuropathy
A MyMyelomaTeam Member asked a question 💭

Does anyone have any suggestions about neuropathy at night? It is sooooo painful I have a hard time going to sleep.

posted July 17, 2021
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A MyMyelomaTeam Member

Cheryl, My Neurologist had me try various drugs, Cymbalta, Lyrica (gave me bone pain) and Gabapentin - It is the only one who helped and it really helped once I got up to a higher dose (different for everyone) Mine was really bad and I had Electrical Pain that was shooting down my foot. I couldn’t even have covers on my feet or wear socks & shoes. I lost a lot of sleep! I ended up on 1,800mg (6 capsules a day) with 600mg Alpha Lipoic Acid (OTC) It wouldn’t be that much for everyone, but I no longer have the electrical pain, I can wear socks/shoes and sleep at night. Cory is right, you have to find what works best for you. 0TC: you can try - Tumeric Acid (Quanol is best for metabolism), Vit - B12, B2, CBD Cream, Acupuncture and others. I have tried H-wave, compression chambers, etc, nothing has worked. Others have had relief but mine was so bad. Some people get relief with narcotics! - It is different for everyone. I am sorry I don’t have a simple answer for you. Love, Marcia 🌼🌸🌻

posted July 18, 2021 (edited)
A MyMyelomaTeam Member

Dove or ivory bar soap between your fitted sheets and mattress at the bottom of the bed. I was skeptical but it really works.

posted July 17, 2021
A MyMyelomaTeam Member

Lyrica is the only thing I've found that helps me. I take 150mg 3 times a day. Without Lyrica I can't sleep, because the peripheral neuropathy is so bad. Work with your doctor to see what helps you the best. It's a trial and error type of thing.

posted July 17, 2021
A MyMyelomaTeam Member

I use Lyrica, 100 mg twice a day.

posted July 19, 2021
A MyMyelomaTeam Member

I agree with Marcia, have to try different things, until you get the right combo🌹. Wishing you the best!

posted July 18, 2021

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