Wendym, Your regular dentist would see the beginnings of osteonecrosis on an X-ray,
My dentist sent me to a very well know oral surgeon in my area. He told me nothing could be done for it and prescribed a rinse to put on a cotton ball and apply to the area twice daily.
It was about 10 months later that I started having pain in my jaw and, at that time I mentioned it to my oncologist. She immediately sent me to a cancer oral surgeon, however, the damage had been done and surgery was necessary. My surgery consisted of removing
1 1/4” of my upper jaw bone and a molar and
3 teeth. Luckily, the necrosis was on my upper jaw and it did not cause any disfigurement. It is a possibility that if it is your lower jaw is involved, you could have a facial disfigurement. I am still being followed by the oral surgeon who does not want me to get a partial until he is positive he removed all of the necrosis. Therefore, my next visit with him will entail an X-Ray.
Believe me, this is a nightmare! And that is why I encourage anyone on this medication to see their dentist more that every 6 months.
The bottom line is, if your regular dentist sees signs of necrosis, immediately ask your oncologist for a referral to a cancer oral surgeon. In this case a regular oral surgeon may not be able to help.
I couldn’t tolerate the 10 mg Revlimid but I had diarrhea and led cramps with other muscles cramping up they tried to counteract all this but after two months the doctor asked me what I wanted to do..I told her cut it to 5 mg.
She did and I have no side effects at all... I believe our bodies will tell us what it can handle..we just need to listen.
Hi Wendym, I go to MD Anderson at Houston. My oncologist did not start any maintenance until 100 + days after my SCT. I had great news yesterday. I have no detectable myeloma at this time. For maintenance I am on Pomylist 28 day cycles. Also dara a shot every week for 2 months, then twice a month for 2 months, then once a month for I don't know how long, maybe for ever. The doctor chose pomylist because I did not respond well with the revlimid previously. I receive 20 Mg of dex only on the days I get the shot.
I wish you the best.
I tolerated for over 5 years,my side effects were deep veins blood clots twice,and severe diarrhea every day,but my onoglist gave meds that worked
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