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Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question đź’­

What is the standard maintenance therapy after a SCT? I am on 10 mg Revlimid every 28 day cycle. What do they prescribe to those who cannot tolerate Revlimid? Just curious what others are doing.

posted May 18, 2021
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A MyMyelomaTeam Member

I haven't taken any drugs after my transplant. On January 24, 2023 it will be 20 years since my transplant. I pray for the same results for all of you!🙏

posted January 16, 2023
A MyMyelomaTeam Member

I couldn’t tolerate the 10 mg Revlimid but I had diarrhea and led cramps with other muscles cramping up they tried to counteract all this but after two months the doctor asked me what I wanted to do..I told her cut it to 5 mg.
She did and I have no side effects at all... I believe our bodies will tell us what it can handle..we just need to listen.

posted June 8, 2021
A MyMyelomaTeam Member

Wendym, Your regular dentist would see the beginnings of osteonecrosis on an X-ray,
My dentist sent me to a very well know oral surgeon in my area. He told me nothing could be done for it and prescribed a rinse to put on a cotton ball and apply to the area twice daily.
It was about 10 months later that I started having pain in my jaw and, at that time I mentioned it to my oncologist. She immediately sent me to a cancer oral surgeon, however, the damage had been done and surgery was necessary. My surgery consisted of removing
1 1/4” of my upper jaw bone and a molar and
3 teeth. Luckily, the necrosis was on my upper jaw and it did not cause any disfigurement. It is a possibility that if it is your lower jaw is involved, you could have a facial disfigurement. I am still being followed by the oral surgeon who does not want me to get a partial until he is positive he removed all of the necrosis. Therefore, my next visit with him will entail an X-Ray.
Believe me, this is a nightmare! And that is why I encourage anyone on this medication to see their dentist more that every 6 months.
The bottom line is, if your regular dentist sees signs of necrosis, immediately ask your oncologist for a referral to a cancer oral surgeon. In this case a regular oral surgeon may not be able to help.
Gail❣️

posted May 21, 2021 (edited)
A MyMyelomaTeam Member

I am on Revlimid 10 mg 21 on 7 off and 2.5 mg of Eliquis only si far so good I walk daily and do yoga to help with fatigue and stiffness

posted January 14, 2023
A MyMyelomaTeam Member

I take Eliquis for blood clots

posted June 9, 2021

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