Connect with others who understand.

sign up log in
About MyMyelomaTeam
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Remission

Remission

Is the definition of remission with MM is being MRD negative?

A MyMyelomaTeam Member said:

I have been on Darzalex, Pomalyst 2 mg, 21 of 28 days and now on just dexamethasone 8 mg on Darzalex days. I am not in a trial. My doctor has to put on my chart myeloma not having achieved remission. My insurance will not pay for Darzalex if they chart that I am in remission. I don't mind, as long as the myeloma is under control. Anyway, that trial sounds like a great thing. I am going to pray you get accepted. You will be tired. Eventually the Darzalex goes to once a month. So it gets lots better. I get the Faspro. Which I love. No IV infusion. Love and prayers to you πŸ™πŸ˜‡

edited, originally posted 9 months ago
A MyMyelomaTeam Member said:

I just got an email that says how Celgene has jacked up the price of Revlimid. I am appalled. The former CEO got a 13 million dollar bonus. I pray that all of you that have it as a maintenance drug have no problem getting it.
Nancy

posted 9 months ago
A MyMyelomaTeam Member said:

I was switched from Revlamid to Pomolyst with about a month break in between and still getting infusions. The Grant continued paying. I contacted the Oncology office financial advisor after receiving a bill for over $2200.00 . She checked and the Grant had paid it.
You might want to call your oncology office financial advisor and talk to them BEFORE paying any cancer related bill.

posted 9 months ago
A MyMyelomaTeam Member said:

Wendym, I pay nothing for Revlimid...Healthwell foundation...co pay relief phone number(Phone number can only be seen by the question and answer creators).

posted 9 months ago
A MyMyelomaTeam Member said:

I have had no issues of any kind since transplant. Now I go once a year for labs and urine test. I take no meds for MM.
Wishing you the same results.
Nancy

posted 9 months ago
Already a Member? Log in