I have been on Darzalex, Pomalyst 2 mg, 21 of 28 days and now on just dexamethasone 8 mg on Darzalex days. I am not in a trial. My doctor has to put on my chart myeloma not having achieved remission. My insurance will not pay for Darzalex if they chart that I am in remission. I don't mind, as long as the myeloma is under control. Anyway, that trial sounds like a great thing. I am going to pray you get accepted. You will be tired. Eventually the Darzalex goes to once a month. So it gets lots better. I get the Faspro. Which I love. No IV infusion. Love and prayers to you 🙏😇

I just got an email that says how Celgene has jacked up the price of Revlimid. I am appalled. The former CEO got a 13 million dollar bonus. I pray that all of you that have it as a maintenance drug have no problem getting it.
Nancy

I was switched from Revlamid to Pomolyst with about a month break in between and still getting infusions. The Grant continued paying. I contacted the Oncology office financial advisor after receiving a bill for over $2200.00 . She checked and the Grant had paid it.
You might want to call your oncology office financial advisor and talk to them BEFORE paying any cancer related bill.

Wendym, I pay nothing for Revlimid...Healthwell foundation...co pay relief phone number(Phone number can only be seen by the question and answer creators).

I have had no issues of any kind since transplant. Now I go once a year for labs and urine test. I take no meds for MM.
Wishing you the same results.
Nancy