Yes, Shermin, the needle hurts, but I prefer the short sting over hours of infusions!

Just remember that remission isn't the only goal. Having your MM under control and leading a healthy lifestyle and good nutrition without going crazy on supplements will help you to have a good long life! Good luck to you.

Hi Nelson, I have not been on Darzalex myself but patients seems to have a very good outcome on it. The first few IV infusions are given very slowly to monitor for side effects. Some of the side effects she may get while getting the infusion is a cough, shortness of breath, heart palpitations, as soon as she feels them they will slow or stop the infusion. As her body gets use to it these side effects don’t occur. She can get nausea, diarrhea and or constipation. Cold like symptoms (sore throat, runny nose etc can occur) OR you may have nothing at all. All Myeloma Drugs come with their own set of side effects. Tackle it with a positive mind set! Love, Marcia 🌸

I take Darzalex and Revlimid together. Darzalex shot once a month and Revlimid 10 mg a day for 21 out of 28 day cycle. My M protein is recently undetectable. I feel good though sometimes have gastrointestinal issues with Revlimid I've been on this combo since around Jan. 2022. My stem cell transplant was Nov. 2021.

I started darzalex in December along with dexamethasone and Ninlaro. My mspike has started to slowly come down, but I want it to work faster. I'm hoping for a good outcome. I don't have any side effects. Feel pretty good. Doctor will let me know this weekend if it is working. That's what counts.