Connect with others who understand.

sign up log in
About MyMyelomaTeam
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Have Experience With Darzalex? My Wife Is Starting Next Week

Anyone Have Experience With Darzalex? My Wife Is Starting Next Week

A MyMyelomaTeam Member said:

Hi Nelson, I have not been on Darzalex myself but patients seems to have a very good outcome on it. The first few IV infusions are given very slowly to monitor for side effects. Some of the side effects she may get while getting the infusion is a cough, shortness of breath, heart palpitations, as soon as she feels them they will slow or stop the infusion. As her body gets use to it these side effects don’t occur. She can get nausea, diarrhea and or constipation. Cold like symptoms (sore throat, runny nose etc can occur) OR you may have nothing at all. All Myeloma Drugs come with their own set of side effects. Tackle it with a positive mind set! Love, Marcia 🌸

posted about 1 year ago
A MyMyelomaTeam Member said:

Just remember that remission isn't the only goal. Having your MM under control and leading a healthy lifestyle and good nutrition without going crazy on supplements will help you to have a good long life! Good luck to you.

posted 9 months ago
A MyMyelomaTeam Member said:

I've been on it with dex for maintance for 3 years. Pretty easy treatment compared to all the hard core chemo treatments in the past. Have good quality of life with it.

posted about 1 year ago
A MyMyelomaTeam Member said:

I started darzalex and after about two months went into remission, even without steroids because I couldn't stand the side effects. First remission and in my fourth year of having MM! Still on darzalex and still in remission six months later.

posted 12 months ago
A MyMyelomaTeam Member said:

I I am taking daralyx on a weekly basis. I have had two infusions so far, And I am feeling very well this week. You have to take premeds and it is very time consuming, but I think in the long run it will be worth it.

posted about 1 year ago
Already a Member? Log in