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Am I "symptomatic", And What Might That Mean?

Am I "symptomatic", And What Might That Mean?

I've yammered a lot already about having an existing cancer -- told it's not related to whatever stage of Myeloma I may be. But symptoms of both seem to potentially "overlap". Ergo I get The Shrugs right now, when I ask if they're Myeloma-related.

New: deep bone pain that makes me snivel, far beyond what I've been told is arthritis. Lumbar; hips; fanny to shins; neck (my eldest grandson, 5, says I look like "Robo-Greema" because I have to now turn my whole body vs just my big fat head). Ribs… read more

A MyMyelomaTeam Member said:

Sounds horrible! What's the other cancer you're supposed to have? Have you had a complete blood workup to look for M-spike, quantitatjve immunoglobulins, light chains, etc.?
What about a PET scan?
Has your onco/hematologist prescribed anything for pain?
With symptoms such as you describe I would think all these measures would be taken.

posted about 1 year ago
A MyMyelomaTeam Member said:

You go ahead and whine ANYTIME!!! This sounds so frustrating!!! I always see the signs that say YOU are the most important person on your medical team!
I would be so upset to dismissive attitudes. Keep on vetting your docs. I hope you are getting the right treatments as you move through this journey.
Susie πŸ˜ŠπŸ’šπŸŒ»

posted about 1 year ago
A MyMyelomaTeam Member said:

You're not whinning. You need a doctor that is willing to find answers for you.

posted about 1 year ago
A MyMyelomaTeam Member said:

Gary, is right. Hoping you are getting the right testing. Sounds like you have a lot of inflammation from something?

posted about 1 year ago
A MyMyelomaTeam Member said:

Hope you get some answers

posted about 1 year ago
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