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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Am I "symptomatic", And What Might That Mean?

A MyMyelomaTeam Member asked a question 💭
Olathe, KS

I've yammered a lot already about having an existing cancer -- told it's not related to whatever stage of Myeloma I may be. But symptoms of both seem to potentially "overlap". Ergo I get The Shrugs right now, when I ask if they're Myeloma-related.

New: deep bone pain that makes me snivel, far beyond what I've been told is arthritis. Lumbar; hips; fanny to shins; neck (my eldest grandson, 5, says I look like "Robo-Greema" because I have to now turn my whole body vs just my big fat head). Ribs… read more

September 11, 2020
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A MyMyelomaTeam Member

Sounds horrible! What's the other cancer you're supposed to have? Have you had a complete blood workup to look for M-spike, quantitatjve immunoglobulins, light chains, etc.?
What about a PET scan?
Has your onco/hematologist prescribed anything for pain?
With symptoms such as you describe I would think all these measures would be taken.

September 12, 2020
A MyMyelomaTeam Member

You go ahead and whine ANYTIME!!! This sounds so frustrating!!! I always see the signs that say YOU are the most important person on your medical team!
I would be so upset to dismissive attitudes. Keep on vetting your docs. I hope you are getting the right treatments as you move through this journey.
Susie 😊💚🌻

September 13, 2020
A MyMyelomaTeam Member

You're not whinning. You need a doctor that is willing to find answers for you.

September 13, 2020
A MyMyelomaTeam Member

Gary, is right. Hoping you are getting the right testing. Sounds like you have a lot of inflammation from something?

September 12, 2020
A MyMyelomaTeam Member

I'm just now finding all the responses here. I'm classically old/feeble with any form of "interwebs". I really thank you all xo

April 28, 2023

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