Has Anyone Had A Chance To Check Out The CureCloud Project By The MMRF? How Do You Feel About Participating In A Study Like This? | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anyone Had A Chance To Check Out The CureCloud Project By The MMRF? How Do You Feel About Participating In A Study Like This?
A MyMyelomaTeam Member asked a question 💭

Is there significant information to be gained by participating or is it more about statistics and funding for the group doing the study?

posted August 2, 2020
•
View reactions
A MyMyelomaTeam Member

I am currently in a clinical trial for a new MM drug. IT IS VERY PROMISING, ALMOST AS GOOD AS C-T. the drug company pays the cost of the drug and the cancer center study team pays good for gas and toll money for each study trip. I'm 1 of 20 on pittsburgh in this study, but I can tell you IT IS VERY VERY PROMISING and is being called a life changer for millions of MM patients. The drug is Talquatemab.

posted March 29, 2023
A MyMyelomaTeam Member

Hi James,
Appreciate your input, have heard about this drug, wishing you the very best and may it help many of us in the future!
Please keep posting in 1 or 2 mos as to how you feel
Mag

posted March 29, 2023
A MyMyelomaTeam Member

We cannot participate because we live in Canada. I think it is a great program

posted August 13, 2023
A MyMyelomaTeam Member

I signed up, but not sure I can be in the study because I'm hoping I'm in remission. I definitely think its a great thing. They will be doing genetics testing on our myeloma and we can get copies of the report. Its supposed to help our doctors decide which treatment is best. My doctor signed the consent and sent it in. But they want you to have active myeloma, so they have enough myeloma cells in yyour blood sample to test. Can't do it if you live in Hawaii, Alaska or New York.

posted August 3, 2020
A MyMyelomaTeam Member

I'm a little bit skeptical of it am not comfortable giving out too much of my stats etc.

posted April 8, 2023

Related content

View All
MMRF Cureclous
A MyMyelomaTeam Member asked a question 💭
Clinical Trials
A MyMyelomaTeam Member asked a question 💭
Clonoseq Blood Vs. BMB
A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in