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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Receiving DARZALEX® (daratumumab) In Lieu Of A BMT?

Anyone Receiving DARZALEX® (daratumumab) In Lieu Of A BMT?

BMT Team Dr says Frank is not a candidate for BMT but recommended DARZALEX® (daratumumab). The side affects are some of the ones that are already affecting Frank
• tiredness
• shortness of breath
• trouble sleeping
• feeling weak
• cough
• muscle spasms
• back pain
• cold-like symptoms (upper respiratory infection)
• nerve damage causing tingling, numbness or pain
• swollen ankles
• constipation
• lightheadedness
He also has Parkinson's and we are wondering if the newly recommended DARZAread more

posted May 25, 2020
A MyMyelomaTeam Member

Donna, I am on 10 mg once a week for three weeks. The dose was cut in half quite a while ago. I am down to 5 mg revlimid as of 2 months ago which has made a big difference in the severity of the fatigue.

posted May 26, 2020
A MyMyelomaTeam Member

I had Daratumumab, alone, for 2 years with really good results for 18 mo. Then the cancer count plateaued. I didn't have many noticeable side effects. Just sleepy the next day, like someone else wrote. It was one of the most effective treatments I've had.
You can also get a 2nd opinion. So easy now with the internet & sending your records to a 2nd doctor. MM specialist recommended!
Good luck & God bless.

posted May 25, 2020
A MyMyelomaTeam Member

I have been on Darzalex, Revlimid and Dexamethasone since 2016. Went into remission in 2018. I do suffer from fatigue, some neuropathy in my feet but overall not a lot of side effects.

posted May 25, 2020
A MyMyelomaTeam Member

I get daramutub once a month with Dexamethasone and about day 4-5 I am a little fatigued and with the Dexamethasone I do not sleep well the first night after infusion. I have too have the infusion over three hours or I am sick for a week after.

posted January 5, 2021
A MyMyelomaTeam Member

I have been on Darzalex for four years - went into remission after two years.
This past week I was able to receive the 90 minute infusion for the first time instead of the 3 1/2 hour infusion. What a time saver!

posted July 10, 2020

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