BMT Team Dr says Frank is not a candidate for BMT but recommended DARZALEX® (daratumumab). The side affects are some of the ones that are already affecting Frank
• shortness of breath
• trouble sleeping
• feeling weak
• muscle spasms
• back pain
• cold-like symptoms (upper respiratory infection)
• nerve damage causing tingling, numbness or pain
• swollen ankles
He also has Parkinson's and we are wondering if the newly recommended DARZA… read more
Donna, I am on 10 mg once a week for three weeks. The dose was cut in half quite a while ago. I am down to 5 mg revlimid as of 2 months ago which has made a big difference in the severity of the fatigue.
I had Daratumumab, alone, for 2 years with really good results for 18 mo. Then the cancer count plateaued. I didn't have many noticeable side effects. Just sleepy the next day, like someone else wrote. It was one of the most effective treatments I've had.
You can also get a 2nd opinion. So easy now with the internet & sending your records to a 2nd doctor. MM specialist recommended!
Good luck & God bless.
I have been on Darzalex for four years - went into remission after two years.
This past week I was able to receive the 90 minute infusion for the first time instead of the 3 1/2 hour infusion. What a time saver!