Anyone Receiving DARZALEX® (daratumumab) In Lieu Of A BMT? | MyMyelomaTeam

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Anyone Receiving DARZALEX® (daratumumab) In Lieu Of A BMT?
A MyMyelomaTeam Member asked a question 💭

BMT Team Dr says Frank is not a candidate for BMT but recommended DARZALEX® (daratumumab). The side affects are some of the ones that are already affecting Frank
• tiredness
• shortness of breath
• trouble sleeping
• feeling weak
• cough
• muscle spasms
• back pain
• cold-like symptoms (upper respiratory infection)
• nerve damage causing tingling, numbness or pain
• swollen ankles
• constipation
• lightheadedness
He also has Parkinson's and we are wondering if the newly recommended DARZAread more

posted May 25, 2020
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A MyMyelomaTeam Member

Donna, I am on 10 mg once a week for three weeks. The dose was cut in half quite a while ago. I am down to 5 mg revlimid as of 2 months ago which has made a big difference in the severity of the fatigue.

posted May 26, 2020
A MyMyelomaTeam Member

I had Daratumumab, alone, for 2 years with really good results for 18 mo. Then the cancer count plateaued. I didn't have many noticeable side effects. Just sleepy the next day, like someone else wrote. It was one of the most effective treatments I've had.
You can also get a 2nd opinion. So easy now with the internet & sending your records to a 2nd doctor. MM specialist recommended!
Good luck & God bless.

posted May 25, 2020
A MyMyelomaTeam Member

I have been on Darzalex, Revlimid and Dexamethasone since 2016. Went into remission in 2018. I do suffer from fatigue, some neuropathy in my feet but overall not a lot of side effects.

posted May 25, 2020
A MyMyelomaTeam Member

I get daramutub once a month with Dexamethasone and about day 4-5 I am a little fatigued and with the Dexamethasone I do not sleep well the first night after infusion. I have too have the infusion over three hours or I am sick for a week after.

posted January 5, 2021
A MyMyelomaTeam Member

I have been on Darzalex for four years - went into remission after two years.
This past week I was able to receive the 90 minute infusion for the first time instead of the 3 1/2 hour infusion. What a time saver!

posted July 10, 2020

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