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I was diagnosed with MM on July 5, 2019. I had a bone marrow biopsy and PET scan. The MM was not showing up in my blood work, bone marrow biopsy or urine. It showed on the PET scan in 4 places on my spine. I switched doctors to be able to be closer to home and he did another bone marrow biopsy. It didn't show anything. I was told I was in the very early stages of MM and started the 4 rounds of chemo, completed that in December, had another bone marrow biopsy which didn't show it, then stem cell… read more
I know a woman whose MM only shows on PET scans. She said it is rare. She is working fulltime and is very active in Myeloma Canada.
Laura, such a blessing to meet you! I also go to Winship. Dr. Nooka, usually see Caleb his PA. Very interesting that your myeloma doesn't show up except on PET scan??? I did have a BMB that hurt for several months afterwards. It finally stopped. I think they hit a nerve. Not sure what they meant by scar tissue?? I'm always knocked out when they do mine and I don't feel anything. I just always do what they say. Cause I feel like they saved my life. Prayers for the best outcomes🙏
Dr. Larry Slaybaugh is the best in Chattanooga,i
He is head of the Multiple Myeloma Dept at Emory. I believe he is well qualified!
I think I would try to find an MM specialist
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