Don't be afraid of the stem cell transplant. I had it 5 yrs ago and only taking Revmilid now. It helps to bring the protein down tremendously. Talk to your doctor and ask him the pro and cons. I used my own blood, best option, not a donor. Best wishes.

I just turned 61, and had my stem cell transplant May 12th. Have been off all meds since then--woo hoo! (And been taking my own vitamin regimen.) Will see my doctors next week, when I feel they will recommend some type of maintenance (chemo). Feel pretty good and am doing what exercising I can to maintain fitness.

If you're young and healthy a transplant is the standard of care for multiple myeloma.

I have not had many side effects apart from neuropathy in my feet, (occasionally in my hands). Diagnosed March 2019, I have been on chemotherapy treatments since then (Velcade, Revlimid, and Dexamethazone). Just went for stem cell collection this past week, and moving towards stem cell transplant soon. I am hoping for complete remission, of course.

Today is my new birthday. I had my stem cell transplant (my own blood) 4 years ago today. It did not put me into remission as I am high risk (deletion 17), but it lowered my blood protein quite a bit. I was 72 at the time and did not have too rough a time with it I would recommend having the transplant. I am about to start Kyprolis along with Darzalex, pomalyst and dexamethasone in a few weeks. I've tried everything else there is so far, and this is the last treatment available except for t-cell. Wish me luck.
Carole
Seaford, Delaware