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Light Chain Disease

Light Chain Disease

Can I ask who has light chain disease and what treatment/s you are receiving and how are they are working and side effects ?

A MyMyelomaTeam Member said:

Do you have kidney disease as well?
Has the revlimid caused you joint or mainly hand pain? Curious cause my doc wants me to stop the Rev with no other alternative although the pain is just in my hands and the kidneys lose a problem for other meds

posted 6 months ago
A MyMyelomaTeam Member said:

I was taken off velcade because of severe muscle spasms. Hands, feet, back. Been off over a week and a better. Get a port Tuesday and startDarselex Fridat. Then it will be Darselex, revlemide and DeX. We shall see how that goes!

posted 4 months ago
A MyMyelomaTeam Member said:

I have light chain was diagnosed in July 2015. I started with radiation to reduce the size of my tumors. Then when to the chemo shots in the stomach. The. To revlimid 25 mg for 3 weeks and off a week. Was on it was quite awhile my immune system when down really bad and got Spectic and spend a week in ICU. Now I am on 10 mg revlimid daily. I have taken one 2 month break and since I know when I get so tired and want to sleep all the time I tell my doctor. I have been in remission for about 3 years. From my reading and talking to medical professionals light chain is the choice if you had a choice for the type you have. Hope this help

posted 6 months ago
A MyMyelomaTeam Member said:

Just a note no side effects. Things go well except for pretty severe edema. Its cause? Anything.

posted 3 months ago
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