Do you have kidney disease as well?
Has the revlimid caused you joint or mainly hand pain? Curious cause my doc wants me to stop the Rev with no other alternative although the pain is just in my hands and the kidneys lose a problem for other meds

I have light chain was diagnosed in July 2015. I started with radiation to reduce the size of my tumors. Then when to the chemo shots in the stomach. The. To revlimid 25 mg for 3 weeks and off a week. Was on it was quite awhile my immune system when down really bad and got Spectic and spend a week in ICU. Now I am on 10 mg revlimid daily. I have taken one 2 month break and since I know when I get so tired and want to sleep all the time I tell my doctor. I have been in remission for about 3 years. From my reading and talking to medical professionals light chain is the choice if you had a choice for the type you have. Hope this help

I was on Revlimid for 2 yrs with Dexamethasone. acyclovir and Bactrim, then switched to Velcade 6 months ago cause the Revlimid stopped working. So far the Velcade is working and the side effect is from the Dexamethasone not sleeping well and of course fatigue. The concern I have is I am on Medicare now and the cost of these medicines are hard for retirees ni on Medicare. The supplemental insurance is like I pay 25% till I go over 6500 out of pocket and then my portion will go down to 5% which is not too bad but still a lot for retirees. I was able to get help from Patient Access network for a year and right now from leukemia/ lymphoma association and now almost running out I am on waiting list for Patient Access Network and try the other Patient Advocate .

Please make sure that you want to take XGEVA you need to be completely informed. I wasn’t and I have lesions on my jaw and pain in my mouth and they cannot do surgery because I took ZOMETA and XGEVA because I was allergic to ZOMETA, the cancer center I was with did not fully inform me and that stuff stays in your body for years. I have a big mess because of those “bone strengtheners” also I have an AMAZING oncology orthopedist. He took me off all the bone strengtheners because they make the bone harder but do not build it back up inside so they can cause other problems. Just make sure you are informed. Personally I will never take bisphosphates again.

I am new to the diagnoses and treatment. I am on a VDR regimen: Velcade, Dexamethasone steroid, Revlimid 20 mg.
I am just completing the 3 weeks of cycle one which is Velcade 2 x week (2 weeks on, 1 off), Dexamethasone 1 x week, Revlimid 1 x d (2 weeks on, 1 off).
They will be adding XGEVA to the regimen in cycle 2.
So far the most discomfort is from the steroids. Just knocks me for a loop. Swelling of feet, hyper, crash, and weight gain.
It's too early to tell how it is working. I will know more when I see my next CBC and can compare the Kappa and Lambda markers to see if there is positive change.