I am newly diagnosed I have stage 1 MM. doctor is putting me a few meds which is saying is a low form of chemo. and Suggested I go get stem cells ready in case I may need a SCT. Is it inevitable that as this progresses I will definitely have to do the stem cell transplant?
Depends on your age. If you are over 75, they win't do a SCT. Also depends on how well you respond to chemo. My husband is 79, stage 3, high risk, non-secretorial MM,
and had 70 percent cancerous cells. Prognosis at first was bleak but after 4 months of RVD and then just VD, he is in remission with .2 percent of cancer cells. He was too old for SCT but responded very very well to chemo. Every case is different and remember YOU are the patient and YOU need to advocate for yourself and make the decision of what you think is best for YOU.
Have been in remission for about a year now. My doctor told me ' your numbers are so good there is no sense in doing a stem cell. Actually they are trying to get away from doing those.' Was glad to hear that as I was nervous about it but would do what had to be done. Live in Iowa and doctor in Lincoln Nebraska.
Keep positive. I've been battling this for 12 years and have used up most of the options. But, I've circled around again and some of the older meds worked. I no longer hope for remission but stability of the disease.
I had med - high dose cytoxin to bring it all down at 1 point. And it worked. Also had doxil around that time.
Keep us posted and stay positive!
Stage 1 is MGUS. Smoldering myeloma is Stage 2. Are you sure you have stage 1? I have SMM and no treatment needed now except the bone remodeling drugs. No chemo yet. I get labs again in 2 months and if there are significant changes, then chemo. It all depends on your lab work on when chemo is started. Stem cells are likely in one's future with MM. Buts Its an individualized situation.
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