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Revlimid Association With Leukemia?

Revlimid Association With Leukemia?

Newly diagnosed SMM and after all test results I just had my 1st meeting with specialist. As moderate risk and no symptoms with M spike 2.3 Kappa 2.0 IgG 20-30% plasma, he prescribed Zometa for my osteoporosis. He said that Revlimid may possibly slow SMM progression. However, with my mother dying from treatment induced AML following what appeared to be successful treatment of NHL, I am not a safe candidate for Revlimid due to its association with leukemia. Is this a typical accepted view for… read more

A MyMyelomaTeam Member said:

Yes it is the new way to go. I believe, could change tomorrow. They have Started treating SMM Just Recently.
Do not open revlimmed. Call the pharmaceutical company that makes it to ask for suggestions. I also believe the taste of the contents may be a lot worse than swallowing the pill. Try, pudding, ice cream, whip cream, mashed potatoes with cornor peas so u won’t know if it’s the pill or vegetable, have someone try to fool you with which spoon full havthe pill😱😄
Good luck. I don’t think it comes as an injectable.
The other one is an injection not bad make sad re the inject it slowly about 10 seconds.

posted over 2 years ago
A MyMyelomaTeam Member said:

Hi Neesy, I was on revlamid it was all side effects, insomnia, constipation, no energy and so on, my doc decided to put me on darmatumumab ( darzalex) and dexamethasone ( steroid) since then I have had no side effects, I`m able to walk the treadmill 3 days a week and strength training 3 days a week i hope you and your Doc get it figured out.

posted over 2 years ago
A MyMyelomaTeam Member said:

I have researched this and Zometa actually reduces cancer cell profileration in some cancers, but is not recommended in kidney dysfunction. And it has a slightly higher incidence of jaw necrosis. More studies needed. According to the 2018 Soc of Clinical oncology guidelines on bone modifying agents, certain drugs are recommended based on certain clinical issues. Persons with compromised kidney function can receive Pamidronate IV over 4-6 hrs.

edited, originally posted about 2 years ago
A MyMyelomaTeam Member said:

I thought most doctors don't treat SMM because they say it doesn't slow down the progression so why treat it ahead of time. They just want to watch and see. Seems hard to hear though.

posted over 2 years ago
A MyMyelomaTeam Member said:

Thank you!

posted about 2 years ago
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