Have Any Of You Taken Xprovio? | MyMyelomaTeam

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Have Any Of You Taken Xprovio?
A MyMyelomaTeam Member asked a question 💭
posted August 27, 2019
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A MyMyelomaTeam Member

Better known as Selinexor.. I have not been on it but I do know someone who started a Clinical Trial at UCLA - Dr Schiller. before Selinexor was approved. After failing 5 drugs including Dara, Revlimid, Velcade, Ninlaro and Pomalyst his numbers kept climbing. After two months his numbers were the normal range. He did suffer side effects, fatigue and nausea. After trying several anti nausea meds and not having them help they have cut his dose of Selinexor in half, and his blood counts are still good, his appetite has returned and he is no longer nauseous, I have also attended a lecture on this drug by a nurse that represents the company that makes Love, Marcia

posted August 27, 2019
A MyMyelomaTeam Member

Xpovio (Selinexor Tablets) oral nuclear export inhibitor. It just got approved. New drug, New drug class. No I'm not on it, but I'm glad it's available.

posted August 27, 2019
A MyMyelomaTeam Member

I have been on Xpovio for almost two cycles. I unfortunately, have almost every side effect noted. The main ones are Extreme Fatigue, Low Blood Counts, Nausea, and Bloating. I am on a once a week oral for three weeks and off one week. My quality of life for four days a week are zero. I am in year 12 since my diagnosis, and My body tends to reject most treatment options, or responds for a month or two and then the markers start to rise. My ANC was so low at the end of the first cycle that I had to skip a week before I started cycle two.

posted July 5, 2023
A MyMyelomaTeam Member

Thank you Donna for explaining. I had heard it was available but I do not know anyone yet who is on it.

posted August 27, 2019

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