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A MyMyelomaTeam Member asked a question 💭
Colorado Springs, CO

Has anyone been put on a bile acid sequestrant to control Revlimid diarrhea? What was the dose? Did it work? Any side effects?

August 2, 2019
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A MyMyelomaTeam Member

Patty, like Marsha I use Imodium AD and my diarrhea is from Revlimid. It does seem to help me. Good luck! Love, Cindy

August 3, 2019
A MyMyelomaTeam Member

Patty, I have tried it and at first I thought it helped but by the end of the month I thought it actually had gotten worse. I have quit using it and just rely on Imodium. My diarrhea hasn’t been a result of Revlimid and I have heard that it does help with Revlimid diarrhea Love, Marcia

August 2, 2019
A MyMyelomaTeam Member

Until I started taking Cholestrymine, the Revlimid that was working wonderfully on the cancer, was causing many, many bouts of diarrhea daily - and I needed a bathroom NOW. Since taking it, and rather than take it twice/day as directed, I only need to take once a day, it has been an absolute lifesaver for me. Imodium was a struggle for me as it wasn’t a guarantee.

September 22, 2019
A MyMyelomaTeam Member

my specialist recommended Kashi Go Rise (the one with 13 grams fiber) and a digestive probiotic. I do both daily and it made a world of difference!

September 13, 2019 (edited)
A MyMyelomaTeam Member

Drink coconut water for diarrhea, it works within hours and avoid any drugs.

August 14, 2019

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