If I Truly Do Have MGUS, Shouldn’t My Oncologist Have Told Me? | MyMyelomaTeam

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If I Truly Do Have MGUS, Shouldn’t My Oncologist Have Told Me?
A MyMyelomaTeam Member asked a question 💭
posted August 1, 2019
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A MyMyelomaTeam Member

Absolutely Katrina! It is time for a second opinion from a MM Specialist to find out if it is truly MGUS, Smoldering or Full blown MM. You should be monitored closely no matter which shows up. Love, Marcia

posted August 2, 2019
A MyMyelomaTeam Member

You need another doctor, they should always provide full information to their patients. I concur with others here, please obtain a second opinion from a doctor who actually cares about his/her patients.

posted December 4, 2021
A MyMyelomaTeam Member

I e-mail my Oncologist today and asked him did I have MGUS? I got no response. Will your insurance pay for a second opinion?

posted August 2, 2019
A MyMyelomaTeam Member

That's the first thing my doctor told me was that I had MGUS. I had that for 2 yrs before it turned into MM. There's no treatment for MGUS except iron if you're anemic which i was. My having MM didn't upset me too much because it was something we always talked about. I had my moments but for the most part I was ok with with the diagnosis.

posted August 1, 2019
A MyMyelomaTeam Member

Katrina - I had a Bone Marrow Biopsy done in 2018 by my old Oncologist - I found a new Doctor and Cancer Center in 2019 - new Doctor asked for my records and told me back in 2018 the Bone Marrow Biopsy confirmed I had MGUS - the old doctor never told me of this - you may want to look for a new Doctor...................

posted August 1, 2019

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