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Nelson, Go to three bars on upper left. Go down to settings then go to account setting then location. Hope you get it changed successfully. Happy Easter! Love, Marcia🌸
Alone going through this suffering. Doctors don’t always tell you everything especially the side effects of the drugs we’re taking. Group therapy really keeps me going. Also Happy NewYear. I look at it this way, “ I beat the SOB’s another year 😘😘😁😁👍👍
Merry Christmas and Happy New Year!
So the idea of cure got me thinking after I recently relapsed after a SCT. I have said this before, why call it a SCT when the real action is to use high dose chemo/poison (use that word poison in front of your oncologist and watch their reaction) to eradicate ALL of your bone marrow
Now use stem cells to regrow marrow. How/why does one single cancer cell come back and eventually clone and multiply? I though the Melphalan killed it all. So maybe a few survived and hid from the maintenance… read more
Dr Brandy and Dr Jockers talk a lot about the gut microbiome. You can watch Dr Brandy on line and Dr Jockers has some great tips on his website. I like his graphics.
Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!
I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
About 2 months before my grant is up for the year they send me another application, I fill it out give it to my Oncologists office they fill out their part and fax it to the pharmaceutical Co. for… read more
Which ones did you keep and are there any that you allowed yourself to not keep? What do doctors recommend?
I had a tandem transplant. After the first one I was only allowed near my car givers and advised to avoid the outside world and i had to take acyclovir since my immune system was trashed. After… read more
I’d like to propose a Test for the members of this Forum that would be able to participate
The idea is to compare your MSpike Results to a Blood Sample (Labs) clonoSEQ Test Results
I’ve recently discussed Labs - Blood Sample clonoSEQ Testing with my Onc at Johns Hopkins (JH). When a person is Negative, JH now accept a Blood Sample clonoSEQ test as a Valid Method to Track a person's MRD Status
Unfortunately, JH feels there's no value in getting a clonoSEQ test (even from a simple blood sample)… read more
Congrats on being Negative
Search for Dr Costa Master Trial
He did a Clinical Trial and concluded if you’re clonoSEQ MRD Negative and two or less high risk factors, that after staying Negative for… read more
I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏
@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️
@A MyMyelomaTeam Member
I have a heart condition too. Many medications are not recommended if you have heart issues. SCT’s are hard. I don’t think I could do it, and I don’t think my doctor would… read more
What about quality of life? I just had another BMB and it was just as painful as the first. The only good thing is that it latest for a few minutes instead of an hour. It seems that there is no norm when getting pain medicine for it.
I have also had a bone marrow biopsy with anesthesia and it was so much better.
