Anyone Have A Wheat Intolerance? | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Anyone Have A Wheat Intolerance?
A MyMyelomaTeam Member asked a question πŸ’­

My diet was changed recently when I went to see a doctor about menopause and chemo. Part of my transplant stuff. She had me switch to all whole wheat stuff and lots of vegetables since I am fat and the way I carry my weight. Needless to say, I have been so sick every since
I finished with chemo and thought for sure I would start feeling better. Not the case. I'm sicker now than I ever was on chemo
My joints and calves hurt so bad it's hard to walk and hurts to touch. The stomach pain… read more

posted April 4, 2019
β€’
View reactions
A MyMyelomaTeam Member

Stephanie, I lost 30 lbs very quickly after transplant. First time in my life I couldn't eat. Please don't worry about your weight. Just eat healthy and extra protein can't hurt.

posted April 5, 2019
A MyMyelomaTeam Member

I have had intestinal issues since my SCT. I have been told it is because of the chemo, given just before the transplant, and will take a long time to heal. My transplant doctor told me that much of the discomfort is due to fiber. I know this is true. My primary oncologist/hemotologist told me, "If it bothers you, don't eat it." That is also the message I received while undergoing my 24 weeks of chemo, etc. before transplant. The dietitian told me to just eat. She wanted to make sure I was eating, even if it was soup from the deli. I have followed that advice and I am getting better. My SCT was in August 2018. Sometimes it is hard because I did nutrition education for many years and feel guilty that I am not eating better. However, I am making progress and happy about that. Good luck. Have you heard of the BRAT diet? It doesn't sound too nutritious but was mentioned in my cancer center materials. Bananas, rice, applesauce and toast, (white rice and bread). I has helped when my stomach was not happy.

posted April 5, 2019
A MyMyelomaTeam Member

Hi Stephanie,
That whole thing sounds like a wheat intolerance to me especially with the joint issue. Hopefully you will start to feel better. Weight was never brought up during my treatment, of course I get weighed every time I visit but before my SCT no mention. I just ate whatever I could get in. I had a terrible appetite. So I agree with the others, no worries about weight, stay healthy so that your transplant is a speedy success. πŸ’›πŸ˜Š

posted April 5, 2019
A MyMyelomaTeam Member

Stephanie hope you feel better. They told my husband to eat lots of protein and healthy foods. They said he would lose weight during sct and he did.

posted April 4, 2019
A MyMyelomaTeam Member

I too lost about 35 pounds after transplant but gained it back about 6 months later. My local Onc wants me to lose the weight again. Good luck

posted April 12, 2019

Related content

View All
Does Anyone Have Interstitial Cystitis And Myeloma?
A MyMyelomaTeam Member asked a question πŸ’­
Does Anyone Have Problems Without Really Bad Leg Cramps Especially At Night? And What Works To Treat Them..
A MyMyelomaTeam Member asked a question πŸ’­
Re: Kyprolis
A MyMyelomaTeam Member asked a question πŸ’­
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in