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Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member said:

I was on Revlimid 10 mg daily for maintenance and it really helped to lower my M-Protein down close to a complete response. After 11 months, I developed an allergic response which caused me to break out in a full body rash and to swell up. I was taken off Revlimid last August and remain drug free. I am still getting my blood checked monthly and if the M-Protein goes up I will try again. I didn't have any other side effects from Revlimid to speak of. My Specialist said that I could expect to have about 80% quality of life on it but I would say up until the rash, my quality of life was more like 90%. I believe each patients experience with Revlimid is different. The bottom line is if Revlimid keeps the MM in check and doesn't make your quality of life too difficult then it is a good idea to stay on it.

posted almost 3 years ago
A MyMyelomaTeam Member said:

I now take revlamid with rice pudding.. the diarrhea stopped.

posted over 1 year ago
A MyMyelomaTeam Member said:

18allyah, There are people on this site that can give you associations and the company itself that can help you with that when they read your post. Stay
positive.
Luv,
Gail❣️

posted over 1 year ago
A MyMyelomaTeam Member said:

Hi nygirl! For diarrhea my GI doctor has me take 2 heaping tablespoons of Metamucil daily. If it's out of control he has me do it twice daily. Worked like a charm!

posted over 2 years ago
A MyMyelomaTeam Member said:

I am also on Revlimid for almost a year. Not too much for side effects. CBD oil is Cannabis oil made from the hemp plant but does not have the THC that makes a person high. It is legal in all 50 states as along as it is .3% or under. Works great for the neuropathy

posted almost 3 years ago
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