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Questions & Answers

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3536 questions
What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
posted April 29
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A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

posted May 1
Hello! I Have Been Referred To Hematologist/oncologist For An M Spike. What Should I Expect With The First Appointment?
A MyMyelomaTeam Member asked a question 💭

My test results from my lab states that I have monoclonal spike in the beta region IFE get pattern shows an IgG type lambda monoclonal protein. Can anyone tell me what the normal protocol is from there? Thanks!

posted April 29
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A MyMyelomaTeam Member

This site also has a list of 40 Questions to ask your doctor.

posted May 2
Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth.
A MyMyelomaTeam Member asked a question 💭
posted April 28
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A MyMyelomaTeam Member

Yes had the metallic taste after my SCT, it does go away. Unfortunately for me my taste and smell also went away. Praying you feel better and have a nice recovery!

posted May 6
Does Anyone Have Treatment Suggestions For Low Back Pain? I Have MM And Suddenly My Lower Back Has Tighten Up.
A MyMyelomaTeam Member asked a question 💭
posted April 28
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A MyMyelomaTeam Member

I have heard about Tylenol use and kidney/liver damage. I have had this conversation with my dr. I am trying to keep use of oxycodone to a minimum
I have been to a pain mgmt dr
and was able to get… read more

posted May 1
What Does A Diagnosis Of MGUS Mean And Does It Progress To Myeloma
A MyMyelomaTeam Member asked a question 💭
posted April 28
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A MyMyelomaTeam Member

No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more

posted April 28
Has Anyone Had The Experience Of Hair Loss After Taking Prednisone?
A MyMyelomaTeam Member asked a question 💭
posted April 28
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A MyMyelomaTeam Member

I know, but I was on it for several months, and my practitioners think it’s likely the cause.

posted April 28
Drvd Treatment
A MyMyelomaTeam Member asked a question 💭

April 2nd what I thought was a bad hip and needed replacement turned out to be multiple myeloma. I was walking and my femur just broke...turns out it was as thin as an eggshell due to lytic lesions. I had a rod put in. 2 days later I had a rod put in my other femur. I am finally home walking with a walker. When I was in the hospital they talked about doing drvd treatment. Monday I meet with the oncologists to go over chemo schedule. Has anyone had drvd treatment? What can I expect? I'm… read more

posted April 28
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A MyMyelomaTeam Member

MarkParker
👍 thank you for your sharing buddy

posted April 29
Have Any Of You Experienced A Bizarre Outbreak? I’ve Never Had Acne. Now I Have Areas (not Face) Of Outbreak- Not “pimples” But Blemishes?
A MyMyelomaTeam Member asked a question 💭

They are strange. I can rub them off- it’s like my skin is all sloughing off- will I emerge as a butterfly? lol.

posted April 28
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A MyMyelomaTeam Member

I have unusual places show up on my skin but apparently mine aren't anything to worry about and don't itch. I was told to keep an eye out for changes.

posted April 29
Can I Bring My Son With Me To Hear What My Wife’s Doctor Says Is Going To Be Her Frontline Treatment To Help Understand Staging.
A MyMyelomaTeam Member asked a question 💭

My wife just had her first bone marrow biopsy. We do not staging or treatment. So scared.

posted April 28
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A MyMyelomaTeam Member

Thank you for the advice 😊

posted April 28
Has Anyone Been On Revlimid For A Long Time An Velcade For Years
A MyMyelomaTeam Member asked a question 💭
posted April 28
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A MyMyelomaTeam Member

Revlimid since my diagnosis, Velcade only during initial treatment before SCT in 2021.

posted April 29
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