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Questions & Answers

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3348 questions
Stem Cell Harvesting - How Long Did Your Doctor Have You Stop Treatment Before Starting Collection?
A MyMyelomaTeam Member asked a question đź’­
posted April 16
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A MyMyelomaTeam Member

My doctor hadn’t seen any of my labs prior to me meeting him. Once he looked at the labs he turned and said to me “Son if we are going to save you we must start chemo right now.”
So he started the… read more

posted 4 days ago
What Foods Are Bad For Multiple Myeloma?
A MyMyelomaTeam Member asked a question đź’­
posted April 15
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A MyMyelomaTeam Member

Actually if you are in remission after a stem cell transplant then there are no restrictions on food. The nutritionist at Fred Hutch said none. Your white blood cells and neutrophils must be in the… read more

posted 5 days ago (edited)
Has Anyone Had Lystic Lesion On Their Breastbone, If So What Did Doctors Do For It, Besides Pain Pills.
A MyMyelomaTeam Member asked a question đź’­

had CT showed 3 lystic lesions on breastbone plus 1 on left 4th rib. In lots of pain. only had 1 treatment Zometa, doctor says in 2-3 weeks will start Chemo. Is there anything else to do doctor says just wait for meds to start. So now severe pain hurts to breath feels like a knife stabbed me in chest. Are pain meds only thing to do.

posted April 14
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A MyMyelomaTeam Member

Ugh! Insurance!!! Talk to your doctor about your pain level. Keep communication open. There are many combinations of drugs that work.

posted April 14
Does Anyone Experience Some Kind Of Shortness Of Breath? Even With Minimal Yoga Classes, Sometimes, I Get Short Of Breath.
A MyMyelomaTeam Member asked a question đź’­
posted April 14
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A MyMyelomaTeam Member

I get short of breath. Pomalyst and Darzalex can both cause it. I get a very heavy feeling at times. I notice it right after I restart my Pomalyst for the month.

posted April 15
Can Someone Explain To Me Why Targeted Therapy To Treat Cancer Is Not Turning Out To Be The Panacea I Once Thought It Could Be?
A MyMyelomaTeam Member asked a question đź’­
posted April 13
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A MyMyelomaTeam Member

My BCMA is almost at the high end. Not good. MM is too complex even for the doctors. I’ve been studying everything I can about it since diagnosis in 2020. A doctor could not even explain to basic to… read more

posted April 14
Can Myopathy Cause Weakness In Your Legs
A MyMyelomaTeam Member asked a question đź’­

Last few weeks I find I can barely stand up if I get on my knees or if I should fall.Takes all my strength and it's still a battle.

posted April 13
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A MyMyelomaTeam Member

One time I was getting something off the floor and slipped down to the floor. I could not get up off the floor. My knees were sore and my legs cramped up. I slept on the floor until someone came to… read more

posted April 15
What Store Can I Go To For Tennis Shoes For Diabetics?
A MyMyelomaTeam Member asked a question đź’­

I have hammertoes, numb toes, and need wide toe box, which I never find.

posted April 13
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A MyMyelomaTeam Member

Thanks I will have to check out that site.

posted 6 days ago (edited)
I Am 72 Years Old.My Doctors Are Talking Bone Marrow Transplant.What Are Your Experiences And Results,please
A MyMyelomaTeam Member asked a question đź’­
posted April 13
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A MyMyelomaTeam Member

@A MyMyelomaTeam Member
I have a heart condition too. Many medications are not recommended if you have heart issues. SCT’s are hard. I don’t think I could do it, and I don’t think my doctor would… read more

posted April 14
Anyone Out There Have Any Experience With Iberdomide???
A MyMyelomaTeam Member asked a question đź’­
posted April 13
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A MyMyelomaTeam Member

No I have not

posted April 13
Does Lelidamide Cause Memory Loss Or Is It Part Of The Multiple Myeloma ?
A MyMyelomaTeam Member asked a question đź’­
posted April 13
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A MyMyelomaTeam Member

Memory problems in people with multiple myeloma can be caused by chemotherapy, known as "chemo brain" or "cog fog." These cognitive issues can also be directly caused by myeloma, due to high levels of… read more

posted April 13
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