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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3306 questions
Anyone Out There Have Any Experience With Iberdomide???
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

No I have not

posted 5 days ago
Does Lelidamide Cause Memory Loss Or Is It Part Of The Multiple Myeloma ?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Memory problems in people with multiple myeloma can be caused by chemotherapy, known as "chemo brain" or "cog fog." These cognitive issues can also be directly caused by myeloma, due to high levels of… read more

posted 5 days ago
It’s As Surreal As Being In The Totality For The Eclipse. I’ve Had These Symptoms For Years And Nobody Put It Together.
A MyMyelomaTeam Member asked a question 💭

Low bp, very low mch and mcv, high rbc, fatigue, etc

A MyMyelomaTeam Member

Wow - I have started having excruciating burning pain in my left hip. Sometimes I can barely put weight on it and the Dr noted a profound deficit - and ordered mri- thank you I feel like this is me… read more

posted April 10
Is This Allowed?
A MyMyelomaTeam Member asked a question 💭

This is another wonderful support group. I have no idea if I can mention it here. They do put their flyers in doctors offices and hospitals. So informative, just like this group. Please delete if it’s not okay. My brain isn’t the sharpest.

A MyMyelomaTeam Member

Have a great Sunday MsJoe🥰💕🌻🙏

posted 4 days ago
Regarding Chemo And Hair Loss: Would U Recommend Cutting My Hair Really Short Before Chemo Or Letting It Fall Out
A MyMyelomaTeam Member asked a question 💭

Stem cell transfer next week

A MyMyelomaTeam Member

My caregiver bought flavored drops to add to ice chips and made a huge difference in being able to taste something during this long process.

posted 5 days ago
How Can I Reduce The Number Of Emails That I Receive?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I don’t get emails any longer. Not sure why but just as glad I don’t have to delete.

posted April 8
I Am Getting Ready To Start Car T Cell Therapy. Any Suggestions Or Advice.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Not yet available where I live. Please keep us posted on your treatment and good luck!

posted April 9
Survival Rate For Mm Patients With Tandem Stem Cell Transplants
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I’ve heard a few people say they had them. 🌹

posted 7 days ago
Is There A Relationship Between Accessibility And Affordability Of Quality Medical Care And Survival Rates Of Cancer Patients?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thanks to you all for finding time to reply to my concerns about MM and survival rates. I think that access to good healthcare is a major determinant to survival rates including other factors.

posted April 8
Common Side Effects Of Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes!! They have great experience with transplant and they know how to treat and alleviate all the side effects 😉

posted 7 days ago
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