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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
4061 questions

Hi. I'm On Recormin For Low HB (thalassemia Related) For Over A Year Now. Does The Meds Cause High Blood Pressure?

A MyMyelomaTeam Member asked a question 💭

I have had a stem cell transplant and am presently on Linolidimide as part of my maintenance program.

A MyMyelomaTeam Member

Kyprolis, a protease inhibitor used instead of Valcade is known to cause high blood pressure. Revlimid also lists HBP as a side effect.

posted 5 days ago

I Have Been Advised That If I Have Private Insurance I MUST It As NHS Will Not Pay. There Are Medications Only Available Privately?

A MyMyelomaTeam Member asked a question 💭

Light Chain Myeloma diagnosed 4.5 years

A MyMyelomaTeam Member

As you are in the UK, this will have to addressed by your health care team.

posted 5 days ago

When You Get A Blood Test And They Report Your WBC, Does That Include The Non-functioning Cancer Cells?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

No

posted 5 days ago

Cómo Les Ha Funcionado Con El Medicamento Zardalex, En Convinacion Con Lenalidomide?

A MyMyelomaTeam Member asked a question 💭

I Had Stem Cell Transplant January 2024 It Has Been Going Very Well Just Wondering If Fatigue At About 7months Was Same For Anyone

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Fatigue and loss of stamina are still present 5 years later. But everyone is different.

posted 5 days ago

Why Is It Suggested I Eat Frequent Small Meals

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thank you for the hug,

posted 3 days ago

How High Does Your Kappa Light Chains Need To Be Before Worrying? No Other Real Concerns. They Are At 90.48 And Ratio Is 8.15. Thank You.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

My Specialist says to worry over 100

posted 5 days ago

Has Anyone Been On Teclistamab For Over Six, Months And How Is It Working For You?

A MyMyelomaTeam Member asked a question 💭

Has Anyone Gone Through A Cell Transplant That Can Tell Me How Long Does It Take To Start Feeling Better? My Husband Is On Day +15,

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I remember at my 4 month check-up telling the doc how disappointed I was that I didn't feel completely back to my old self. She said it could take up to a year!!! It didn't take me that long, but that… read more

posted 3 days ago

Has Anybody Tried Mistletoe Drip, Apparently It’s Something That Can Help With Myeloma? Thru A Natural Path? Just Wondering?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

One day “they” will find eating acorns is better than Revlimid but we will have to change the name. Whatever works, I’m all for it. Myeloma sure has a lot of ups and downs. It’s complex. Hope everyone… read more

posted 7 days ago
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