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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Has Velcade Worked For Multiple Myeloma After A Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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A MyMyelomaTeam Member

Wow Cheryl. What a story. Praise God your husband is doing well.

posted 10 hours ago
Does Anyone Have Any Information On These Treatments, Daratumumab Or Pomalyst?
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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A MyMyelomaTeam Member

Thanks, for updating me on your experiences and hopefully both conditions soon subside, energy and respiratory system are normal.

posted 24 hours ago
AL Amyloidosis And Multiple Myeloma
A MyMyelomaTeam Member asked a question 💭

Is anyone dealing with MM and AL amyloidosis? If so, can you please tell me your symptoms, how do you manage the amyloidosis, and what significant impact does it have on MM and your daily activities? I am going through testing now to see if I also have AL Amyloidosis.

Veronica2

posted 3 days ago
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A MyMyelomaTeam Member

Veronica,
Let me know how you are doing. I pray you have a negative report. By the way, it was the easiest biopsy I will ever have. No pain.
Paula

posted 2 days ago
Hello How Do I Unsubscribe From All Emails. Thanks
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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Has Anyone Been Treated With Car-t Cell Therapy? I Am Considering Clinical Trial.
A MyMyelomaTeam Member asked a question 💭
posted 4 days ago
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A MyMyelomaTeam Member

I will do that.

posted 3 days ago
Is Anyone Here In Stage 3?
A MyMyelomaTeam Member asked a question 💭

My platelets dropped to I think 70,000 they said. I'm on revlmed I was in the hospital for 2 weeks
recently and had parainfluenza 3 and I was very bad but I finally pulled
Out of it. My blood count raised today I was supposed to start chemo revlmed again but because of platelets we have to wait another 2 weeks. I just want to know if anyone has been in any type of this situation or how you been doing in stage 3 or how long u have been living with it

posted 4 days ago
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A MyMyelomaTeam Member

Hi Ed,
Stay Strong and positive. Praying for you and your family. God is a healer.

posted 3 days ago
Question For The Group. How Are You Handling The Cost Of Your Medication?
A MyMyelomaTeam Member asked a question 💭

I use Medicare and at one point I was able to get some help from grants, but they all seem to be "fully subscribed" meaning no funds are available. It causing me to wonder, medication or continue with the basic things in life. Water, electricity, food etc in lieu of medication. Your thoughts please.

posted 4 days ago
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A MyMyelomaTeam Member

Which company provides your medical insurance? Thanks

posted 4 hours ago
Does Anyone Worry Constantly About Dying? About How Long We Can Survive This Cancer?
A MyMyelomaTeam Member asked a question 💭

I know I’m silly doing it but I just can’t help it. I worry everyday about dying from this cancer. I finish my first line of treatment on Thursday. I’ve had 6 months of dvtd and a stem cell transplant. Family say, be positive, don’t think about what and when, but I’m finding it difficult.

posted 5 days ago
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A MyMyelomaTeam Member

DGuntger,
You are right! Thank you for sharing your faith. It’s faith that gets us through the darkest moments of our life. We are loved! Each and every one! ✝️❤️🌹
Paula🌹

posted 1 day ago
Question About Disability
A MyMyelomaTeam Member asked a question 💭

I was diagnosed in 2021 with MM and had a successful stem cell transplant. I returned full time to teaching, but just feel too tired and in pain on a regular basis. I am currently looking into my district disability policy as an option. I’m wondering if anyone here has any experience with this?

posted 5 days ago
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A MyMyelomaTeam Member

Thanks for the info and your quick response!

posted 5 days ago
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