Questions & Answers

Is It Normal To Feel Very Tired With Smouldering Myeloma Even If I Am Not On Any Medication With It.

I Have Increasing Neuropathy In My Feet And Lower Legs And Wonder What Treatments Others Are Having Success Wit

I have weekly acupuncture and also reflexology massage and do episode salt soaks. My primary care doctor is really pushing gabapentin but I have not heard of great results from that either and prefer to keep medications at a reasonable minimum. Am I just being stubborn?

How Many Of You Are In Remission From Multiple Myloma . Are You Still Taking A Monthly Infusion? What Drug? If You Stopped How Long Ago?

I have been in remission over a year and have been taking monthly infusions of Darzelex but recently I ran across an article describing the side effects of Darzelex and I have many of them. I have decided to stop Darzelex in order to build my immune system.

Multiple Myloma Pain

Why do MM patients suffer from so much pain while going through treatment? Does this mean that the treatment isn't effective?

Does Being On Revlimid Long Term Cause Other Issues Such As Kidneys, Heart, Liver, Etc…? Should You Try To Get Off It If You Are -MRD?

Does Anyone Out There Know Or Have Been Diagnosed With POEMS A White Blood Cell Cancer Treated As MM. ?

Polyneuropathy
Organomegaly
Endocrinopathy
Monoclonal gammopathy
Skin abnormalities

Does Anyone Take Dexamethasone And Revlimid As Maintence?

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

Has Anyone Feet And Palms Changed Colors While Taking Revlimid ? My Palms And Feet Are Extremely Dark

Just Finished 28 Day Cycle On Revlimid. Why Didn't They Do A Blood And Urine Test To Progress Of Taking The Revlimid?

Is There Any Connection Between Myeloma And Neurofibromatosis Type 1? I Have Both Conditions. Thank You For Any Responses.