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Myeloma

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Anyone With Myeloma, How Many Pet Scans Have You Had

Anyone With Myeloma, How Many Pet Scans Have You Had

A MyMyelomaTeam Member said:

Thx, I started this process in 2010 have had one pet scan two cats and three biopsies. My doctor doesn't seem to want to do much for the pain that I'm having, I just want to know whats causing it… read more

posted 25 days ago

Tested Positive Yesterday For Covid

Tested Positive Yesterday For Covid

I have dry caugh runny nose,no fever,symptoms start thursday,Thursday, the worse is the caugh ,any tips from similar situation will be great ,I will call my doctor tomorrow , did u use any medication for caugh,thanks u all

A MyMyelomaTeam Member said:

We are with you Samar! 🙏🏻 I had Covid in march 2020, no visit and no swab because of the emergency. It was at the beginning, we didn't know this virus. Hospitals in Italy were full....I slowly… read more

posted 22 days ago

PAXLOVID

PAXLOVID

Does anybody have any info on the newly approved Covid drug PAXLOVID?

A MyMyelomaTeam Member said:

Yes, the hospital called me about that. That's what scares me. I'm just afraid, from what I have read, that there will inevitably more after that and more often. That is, if our weakened systems can… read more

posted 7 days ago

Has Anyone Experienced Vision Issues Due To Their Revlimid Or Valacyclovir Or Omeprazole Medication?

Has Anyone Experienced Vision Issues Due To Their Revlimid Or Valacyclovir Or Omeprazole Medication?

I’m currently in remission following my SCT in November 2020. I take Revlimid 10 mg 21 days on/7 days off. The Valacyclovir is 500 mg twice daily. Omeprazole 20 mg daily.

In last few months, my vision seems to fluctuate. Blurrier some days more than others. I’ve had a full eye exam with an ophthalmologist & he did not find any issues related to the health of my eyes. They tested my eyes & I purchased glasses but I am still not seeing clearly. Thanks for any suggestions you can offer.

A MyMyelomaTeam Member said:

I take revlimid and acyclovir but I haven't had any vision problems. I just had my eyes checked and they didn't find any issues during my exam. Prayers for you and they can find the cause of your… read more

posted about 1 month ago

Private Message

Private Message

I would like to send a PM of good wishes to a a team member facing challenges Is that possible?

Thank you

A MyMyelomaTeam Member said:

Thank you Tricia💕

posted about 1 month ago

Stage 1, Over 70, Stem Cell Transplant?

Stage 1, Over 70, Stem Cell Transplant?

Hi! I would like to know if anyone began protocols for Stem Cell Transplant when Stage 1 moved from smoldering to active (not Stage 2). My mother is on this road within 1 month of this advancement. As I research, I find that there are numerous options to consider AND Medicare guideline cover Stage 2 And 3.

Thanks!

A MyMyelomaTeam Member said:

Hi my husband was stage 1 active in that the myeloma had actually eaten a hole in his right hip and femur bone. He was 75 at the time of diagnosis. They started him on the big 3 Revlimidread more

edited, originally posted 30 days ago

Yes

Yes

I have smoldering MM but don’t see a lot of others here that might be experiencing it??

A MyMyelomaTeam Member said:

That is super Louise. I am 71 and other than the Myeloma, in pretty good health. Met with the “main man” yesterday at the Georgia Cancer Center and we are a “go” for the SCT probably late Feb or early… read more

posted 29 days ago
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