Connect with others who understand.

sign up log in
About MyMyelomaTeam

Myeloma

Questions + Answers

Don't see your question? ask question
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight.

I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight.

Going to have my stem cell transplant in 3/12 weeks. I will be hospitalized for 2 to 3 weeks I’m told. I’ve lost 30 plus pounds.
Will I be losing more weight? Will I gain weight months after my transplant? Should I get rid of my old me clothes? I don’t want to keep buying clothes. Please help. Thanks in advance for answering my questions. I truly appreciate it.
Ps I was on Revlimid , Velcade, Darzalex Fastpro and Dexamethasone.

A MyMyelomaTeam Member said:

I lost about 6 pounds, and promptly gained it all back! Good luck and I hope it goes well for you

posted 7 days ago

What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?

What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?

A MyMyelomaTeam Member said:

This is actually some things I've done because of post polio. I use an office chair a lot. I use short handled broom and Swifer mop. If my back is really bothering me but I need to make dinner I can… read more

posted 7 days ago

Has Anyone Else Found The Book “HOW NOT TO DIE”. It’s Awesome!

Has Anyone Else Found The Book “HOW NOT TO DIE”. It’s Awesome!

It’s all about plant based diet but a lot of great information on MM and every illness/disease!

A MyMyelomaTeam Member said:

Thanks 😊

posted 15 days ago

Hss Anyone Had Any Issues With Their Creatinine Levels While Combating SMM?

Hss Anyone Had Any Issues With Their Creatinine Levels While Combating SMM?

I just got my test results for my bi-monthly blood work and my creatinine level is now outside the normal range. Should this be a concern? I have a appointment with my oncologist and I thought I should bring this up to ease my tensions regarding any kidney issues.

A MyMyelomaTeam Member said:

I find a speciallist is good, he only deals with myeloma , which is relatively rare, and my regular oncologist deals with all cancers.

posted 1 day ago

Can Multiple Myeloma Spread By Needle Stick Injury?

Can Multiple Myeloma Spread By Needle Stick Injury?

Well, i just pricked by a saline needle of my father's who is suffering from MM. So I was wondering if there is any chances of multiple myeloma to get spread by Needle stick injury?

A MyMyelomaTeam Member said:

No, you can't catch myeloma from a needle stick injury. But you can get other things like hepatitis and HIV. Hera, you should be using a needleless system to flush his lines.

edited, originally posted 20 days ago

Hi

Hi

my m spike was not detectable for 4 months,after that it's go up to 0,1 for 2 months and now I just received my blood result it is 0,2 so I'm start to worry, is that happen with any of u my friends, thanks

A MyMyelomaTeam Member said:

CrisBanta Can’t your insurance help you find a specialist I believe it is Crucial to have a doctor that specializes in MM Good Luck Take Care I will be praying you can find someone to help you find a… read more

posted about 6 hours ago

How Do You Feel After Stem Cell Collection?

How Do You Feel After Stem Cell Collection?

I will have the central line placed tomorrow and the collection, apheresis, 6/15 16. My question is, how do you feel over the next week following the collection?

Thanks,

Howard

A MyMyelomaTeam Member said:

Thx.

posted 1 day ago

Diagnosed

Diagnosed

What does it mean when your oncologist tells you that you have no active myeloma? It’s been 6 years since I was diagnosed.

A MyMyelomaTeam Member said:

You should have normal light chains and ratio. You should not have an m spike 0.0. No new bone lesions. No myeloma cells on bone marrow biopsy. Also MRD negative would be great👍💕

edited, originally posted 22 days ago
Already a Member? Log in