Questions & Answers

Is anyone dealing with MM and AL amyloidosis? If so, can you please tell me your symptoms, how do you manage the amyloidosis, and what significant impact does it have on MM and your daily activities? I am going through testing now to see if I also have AL Amyloidosis.

Veronica2

My platelets dropped to I think 70,000 they said. I'm on revlmed I was in the hospital for 2 weeks
recently and had parainfluenza 3 and I was very bad but I finally pulled
Out of it. My blood count raised today I was supposed to start chemo revlmed again but because of platelets we have to wait another 2 weeks. I just want to know if anyone has been in any type of this situation or how you been doing in stage 3 or how long u have been living with it

I use Medicare and at one point I was able to get some help from grants, but they all seem to be "fully subscribed" meaning no funds are available. It causing me to wonder, medication or continue with the basic things in life. Water, electricity, food etc in lieu of medication. Your thoughts please.

I know I’m silly doing it but I just can’t help it. I worry everyday about dying from this cancer. I finish my first line of treatment on Thursday. I’ve had 6 months of dvtd and a stem cell transplant. Family say, be positive, don’t think about what and when, but I’m finding it difficult.

I was diagnosed in 2021 with MM and had a successful stem cell transplant. I returned full time to teaching, but just feel too tired and in pain on a regular basis. I am currently looking into my district disability policy as an option. I’m wondering if anyone here has any experience with this?