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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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I Have Increasing Neuropathy In My Feet And Lower Legs And Wonder What Treatments Others Are Having Success Wit

I Have Increasing Neuropathy In My Feet And Lower Legs And Wonder What Treatments Others Are Having Success Wit

I have weekly acupuncture and also reflexology massage and do episode salt soaks. My primary care doctor is really pushing gabapentin but I have not heard of great results from that either and prefer to keep medications at a reasonable minimum. Am I just being stubborn?

posted 6 days ago
A MyMyelomaTeam Member

I’ve been on Gabapentin for a year and it never helped. I’ve just changed to Lyrica but it’s too soon to know.

posted 3 days ago

How Many Of You Are In Remission From Multiple Myloma . Are You Still Taking A Monthly Infusion? What Drug? If You Stopped How Long Ago?

How Many Of You Are In Remission From Multiple Myloma . Are You Still Taking A Monthly Infusion? What Drug? If You Stopped How Long Ago?

I have been in remission over a year and have been taking monthly infusions of Darzelex but recently I ran across an article describing the side effects of Darzelex and I have many of them. I have decided to stop Darzelex in order to build my immune system.

posted 6 days ago
A MyMyelomaTeam Member

Thank you

posted 4 days ago

Multiple Myloma Pain

Multiple Myloma Pain

Why do MM patients suffer from so much pain while going through treatment? Does this mean that the treatment isn't effective?

posted 6 days ago
A MyMyelomaTeam Member

Good morning. I was diagnosed with MM early, Stage 1. It hadn’t spread and there wasn’t any pain. Over the years I had severe back problems that were not due to MM which resulted in arthritis. For the… read more

posted 2 days ago

Does Being On Revlimid Long Term Cause Other Issues Such As Kidneys, Heart, Liver, Etc…? Should You Try To Get Off It If You Are -MRD?

Does Being On Revlimid Long Term Cause Other Issues Such As Kidneys, Heart, Liver, Etc…? Should You Try To Get Off It If You Are -MRD?

posted 6 days ago
A MyMyelomaTeam Member

Eddie, I really love that CAR t therapy doesn't require maintenance afterwards. I am praying this will be the way of the future. Maintenance drugs are extremely expensive and the fatigue from them is… read more

posted 5 days ago

Does Anyone Take Dexamethasone And Revlimid As Maintence?

Does Anyone Take Dexamethasone And Revlimid As Maintence?

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

posted 6 days ago
A MyMyelomaTeam Member

@A MyMyelomaTeam Member, hi Donna. All I can say is, you and me both!😳

posted 1 day ago

Has Anyone Feet And Palms Changed Colors While Taking Revlimid ? My Palms And Feet Are Extremely Dark

Has Anyone Feet And Palms Changed Colors While Taking Revlimid ? My Palms And Feet Are Extremely Dark

posted 6 days ago
A MyMyelomaTeam Member

No I never heard of that. Please keep us posted what the doctor says about it.

posted 5 days ago
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