Having medium risk Smoldering Multiple Myeloma with genetic deletion 17p TP53 and deletion 13q. I was wondering if anyone has, or is doing any of the clinical trials for medium risk or high risk Smoldering Multiple Myeloma? If so, with good results? Thoughts?
I have a phone call appointment with my SMM specialist in Kansas City the 12th of May and I am going to inquire about clinical trials for Smoldering Multiple Myeloma.
Thank you, Rick
My husband has bad neuropathy in his feet. He does not want to take anymore pills.
Neuropathy is really hindering his activity.
My husband diagnosed with MM 1999 with MM. Had VAD. Kyphoplasty 3 levels then autologous stem cell transplant. All in 1999
In 2015 was started on revlemid for maintenance and did well until this year. M protein levels starting to slowly climb. Switched to daratumumab/velcade//dexamethasone in March and M protein level stable but not decreasing. Specialist wants to repeat autologous stem cell transplant. Would CART T be a better option? Can you do SCT and have CART T later? Can they harvest both… read more
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