Questions & Answers

My Last Two Months Of Blood Tests Have Shown Low

Social Security Disability

Is anyone out there with Smoldering Multiple Myeloma on Social Security Disability? If yes, what qualifies you? The diagnosis itself or symptoms? I am retiring in 4 months at 53 years old with Intermediate Risk Smoldering Myeloma. My prognosis is 3-5 years until active myeloma, therefore I want to remodel a fixer upper single level home that I just purchased and travel before beginning treatment.

My Oncologist Has Recommended Lowering My Maintenance Revlimid Dosage To Something Less Than 10 Mg. I Have Been Taking 10mg A Day For 6 Yrs

How Can I Keep My Risk Of Getting Multiple Myeloma If My Parents Have It?

My mother(46 years) was diagnosed with Stage II multiple myeloma. Although she was diagnosed, her overall health condition is very good
She's a non diabetic
No renal failure
LDH levels are normal
Albumin is 4.3
Ig is 3.98
No high risk cytogenetics in FISH report. Just because her Ig crossed 3.5, doctor classified her myeloma as per International staging system. I am ensuring she's getting the best treatment possoble. Now my question is, is there any risk of inheritance and how can we protect… read more

Medication For The Flu

Is It Normal To Feel Very Tired With Smouldering Myeloma Even If I Am Not On Any Medication With It.

Does Anyone Out There Know Or Have Been Diagnosed With POEMS A White Blood Cell Cancer Treated As MM. ?

Polyneuropathy
Organomegaly
Endocrinopathy
Monoclonal gammopathy
Skin abnormalities

Is There Any Connection Between Myeloma And Neurofibromatosis Type 1? I Have Both Conditions. Thank You For Any Responses.

SCT Sixteen Years Ago. Clinical Trial. No MM Is Present Now.

I took Thalidamide, Dex and Revlomid. My little toe on my right foot started going numb. Now the neuropathy is in both legs going up my thighs. Has anyone suffered from this? And fatigue is still my enemy.
So be very aware of the effect on your feet and tell your Dr. Right away.
Prayers for all of you beginning this journey.
Its long, hard and sometimes frustrating but you can do it.🙏🙏💞💞

3 Months Severe Vertigo 4 Yrs Stage 3 Remission