Questions & Answers

71 yrs old. 3 yrs out from stem cell transplant. Would not like to go through that again. Dr says remission. Numbers are staying steady. Shortness of breath, dizziness, body weakness.

Anyone first diagnosed with MGUS and later with SMM or MM? Although I know not everyone with MGUS will progress, I am curious about ones that have. Like how long was progression from MGUS to SMM or MM? What diagnostic tests were done for you with MGUS? Is a bone marrow biopsy standard procedure with MGUS, or just after SMM or MM diagnosis?

I am considered high risk MGUS, have some concerning symptoms, and my oldest brother had MM and a sister had biphenotypic leukemia. Although I really… read more