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Myeloma

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What Are Best Options

After 22 Years My Husband Is Slowly Coming Out Of Remission. First SCT 1999. Proposing 2nd Stem Cell Transplant? What Are Best Options

My husband diagnosed with MM 1999 with MM. Had VAD. Kyphoplasty 3 levels then autologous stem cell transplant. All in 1999
In 2015 was started on revlemid for maintenance and did well until this year. M protein levels starting to slowly climb. Switched to daratumumab/velcade//dexamethasone in March and M protein level stable but not decreasing. Specialist wants to repeat autologous stem cell transplant. Would CART T be a better option? Can you do SCT and have CART T later? Can they harvest both… read more

HI I'm Trying To Reset My Password. So I'm On A Team Already. IM Pat

HI I'm Trying To Reset My Password. So I'm On A Team Already. IM Pat

I'm trying to reset my password so I'm on a team already. Which info do you need. I'm Pat in Estill Springs, TN. Please help me, I put in my new password already but it requests more info and my old info is correct I feel.. Thanks for your help. I'm getting frustrated.

What Happens When You Have Recurrent Myeloma

What Happens When You Have Recurrent Myeloma

A MyMyelomaTeam Member said:

The myeloma Specialists will change your treatment. Since there is no cure relapse is very common. But with stem cell transplant and new drug protocols, remissions are lasting longer for many people 💕

edited, originally posted 11 months ago

I Have Been Brusing And Bleeding Easily....no Blood Thinners....are There Others Witnessing The Same ???

I Have Been Brusing And Bleeding Easily....no Blood Thinners....are There Others Witnessing The Same ???

A MyMyelomaTeam Member said:

verniers, Hi, and it is common for Myeloma Patients. You don’t clot like you use to, Your platelets are usually low, this can also mess with your clotting factor. Multiple Myeloma is very vascular… read more

posted 20 days ago

How Do I Post My Story?

How Do I Post My Story?

A MyMyelomaTeam Member said:

Jilly, Click your picture, then click the tab under your picture “story” then post story! Hav3 a lovely day! Love, Marcia 🌼🌸🌻

posted 3 months ago
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