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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Can Darzalex Cause Continued Dizziness And Unbalance? I Get Darzalex Every Month But I Am Continuously Dizzy And Unbalance.
A MyMyelomaTeam Member asked a question πŸ’­
posted January 7
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My Last Two Months Of Blood Tests Have Shown Low
A MyMyelomaTeam Member asked a question πŸ’­
posted October 5, 2022
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I Till Have Pins And Needles 4 And 1/2 Months After Treatment
A MyMyelomaTeam Member asked a question πŸ’­
posted 4 days ago
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Has Anyone Here Received CAR T?
A MyMyelomaTeam Member asked a question πŸ’­

I'm wondering about your experiences, good and bad.

posted February 10
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How I Will Now When Is Coming Our Farewell?
A MyMyelomaTeam Member asked a question πŸ’­

When the cancer came back she will have may other drugs to support her no?

posted January 25
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What Is The Best Relieve Treatment For Neuropathy Or What Advise Is Available To Help Ease Neuropathy?
A MyMyelomaTeam Member asked a question πŸ’­
posted January 7
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I Am Present,y MGUS. Recent Bloodwork Showed Two M Spikes Kappa .06 And Lambda .04.
A MyMyelomaTeam Member asked a question πŸ’­

This was the first time there were 2 m spikes. Has this happened to anyone else, or might you know the significance. my onc/hem said I am still MGUs...the numbers are still good . I am concerned.

posted December 3, 2022
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Does Anyone Out There Know Or Have Been Diagnosed With POEMS A White Blood Cell Cancer Treated As MM. ?
A MyMyelomaTeam Member asked a question πŸ’­

Polyneuropathy
Organomegaly
Endocrinopathy
Monoclonal gammopathy
Skin abnormalities

posted November 26, 2022
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How Can I Keep My Risk Of Getting Multiple Myeloma If My Parents Have It?
A MyMyelomaTeam Member asked a question πŸ’­

My mother(46 years) was diagnosed with Stage II multiple myeloma. Although she was diagnosed, her overall health condition is very good
She's a non diabetic
No renal failure
LDH levels are normal
Albumin is 4.3
Ig is 3.98
No high risk cytogenetics in FISH report. Just because her Ig crossed 3.5, doctor classified her myeloma as per International staging system. I am ensuring she's getting the best treatment possoble. Now my question is, is there any risk of inheritance and how can we protect… read more

posted November 22, 2022
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Clinical Trials For SMM
A MyMyelomaTeam Member asked a question πŸ’­

Having medium risk Smoldering Multiple Myeloma with genetic deletion 17p TP53 and deletion 13q. I was wondering if anyone has, or is doing any of the clinical trials for medium risk or high risk Smoldering Multiple Myeloma? If so, with good results? Thoughts?

I have a phone call appointment with my SMM specialist in Kansas City the 12th of May and I am going to inquire about clinical trials for Smoldering Multiple Myeloma.

Thank you, Rick

posted April 30, 2022
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