Questions & Answers

I'm wondering about your experiences, good and bad.

When the cancer came back she will have may other drugs to support her no?

This was the first time there were 2 m spikes. Has this happened to anyone else, or might you know the significance. my onc/hem said I am still MGUs...the numbers are still good . I am concerned.

Polyneuropathy
Organomegaly
Endocrinopathy
Monoclonal gammopathy
Skin abnormalities

My mother(46 years) was diagnosed with Stage II multiple myeloma. Although she was diagnosed, her overall health condition is very good
She's a non diabetic
No renal failure
LDH levels are normal
Albumin is 4.3
Ig is 3.98
No high risk cytogenetics in FISH report. Just because her Ig crossed 3.5, doctor classified her myeloma as per International staging system. I am ensuring she's getting the best treatment possoble. Now my question is, is there any risk of inheritance and how can we protect… read more

Having medium risk Smoldering Multiple Myeloma with genetic deletion 17p TP53 and deletion 13q. I was wondering if anyone has, or is doing any of the clinical trials for medium risk or high risk Smoldering Multiple Myeloma? If so, with good results? Thoughts?

I have a phone call appointment with my SMM specialist in Kansas City the 12th of May and I am going to inquire about clinical trials for Smoldering Multiple Myeloma.

Thank you, Rick