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How long does it take for the immune system to rebound?
I had mine in 2012, took about a month before I started to feel good, still fighting it going on 12 years. Good luck with yours.
My husband was diagnosed after Covid pandemic.
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
Almost daily, I have a feeling of tightness around my lower ribs, like someone has a band Around them and keeps tightening it. The area also feels numb. Has anyone elseexperienced this?
I see a neurologist because I was having nasty fainting spells early in my MM. My doctor sent me to a neurologist thinking the problem was "electrical". Once they found that it was cardiac and caused… read more
My oncologist said that I’d be going to 10mg of Revlimid for maintenance therapy. Said I should feel much better. Anyone have firsthand experience??
I hear you about the pain killer You know, sometimes ( might be my imagination ), that when I take some things, like over the counter meds or a caffeine tablet, I get a back ache. I know your… read more
For those taking dexamethasone how much do you take and how often?
Thank you everyone for your responses. I checked with my oncologist and I am going to split my dexamethasone into two doses one on Tuesday and the other on Friday Velcade day. Appreciate learning about this option and I hope it will reduce my roller coaster weeks.
;-)
Baking has been my recreation for a while now. I definitely can gain weight, but I try to give things away and freeze a lot.
My back has been sore / stiff but I forced myself to go for a walk around the block this morning and I believe it feels better.
Sat. is my general cleaning day; well it used to be. Now it just depends. It's colder here, so outdoor stuff will kind of .....hibernate, soon. I still have to vacuum the inside of the van......today… read more
Very good advice😉
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more
Seeeee.....I wish I was so curious and able to understand complex ideas.
Major game changer - significantly more accurate testing without a Bone Marrow Biopsy - only requires a blood sample.
Link to the Video:
https://www.youtube.com/watch?v=OMTJvBDWe6w
According to Dr. Durie
There is a new test, called BloodFlow.
This is a powerful new sensitive technique for measuring MRD, used with a blood sample.
Invented at the University of Pamplona in Spain, by Dr. Bruno Paiva.
Take a blood sample, MM cells are concentrated, using immunomagnetic beads.
The sensitivity is… read more
Hi Bess57 - Valid point, not here yet but hopefully very soon.
For now, I encourage people to get the clonoSEQ.com test through their participating Doc via a Blood Sample (not a BMB) for accurate… read more
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