Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback. | MyMyelomaTeam

Connect with others who understand.

sign up log in
Resources
About MyMyelomaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question 💭
posted October 31, 2022
View reactions
B-12 Update
A MyMyelomaTeam Member asked a question 💭

Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸

posted July 1 (edited)
View reactions
A MyMyelomaTeam Member

I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more

posted July 9
Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

posted November 26, 2022
View reactions
A MyMyelomaTeam Member

I take no dec but just revlimed
5mg

posted September 6
Maintenance Therapy
A MyMyelomaTeam Member asked a question 💭

My oncologist said that I’d be going to 10mg of Revlimid for maintenance therapy. Said I should feel much better. Anyone have firsthand experience??

posted August 18
View reactions
A MyMyelomaTeam Member

And I was prescribed an 81mg chewable aspirin to help thin blood.

posted 5 days ago
How Many Of You Would Chose Treatment Again.
A MyMyelomaTeam Member asked a question 💭

I’m writing Pro’s and Con’s for treatment. My mother had stage 4 ovarian cancer 3 times. Chemo, cured, reoccurrence, chemo & surgery, reoccurrence. In the end she read her Chemo diary and decided against any further treatment. She did have quality of life in the end.

posted April 14
View reactions
A MyMyelomaTeam Member

Induction, yes, I would. I mean when cancer comes into your life, to get it fixed is the main thing.

posted 1 day ago
Please Pray For A Cure For Multiple Myeloma.
A MyMyelomaTeam Member asked a question 💭

Hello all my shipmates,
Please spread the word to all your team shipmates.
Everyday at NOON wherever you are please say a simple prayer.
God, please find a cure for Multiple Myeloma. Amen. Also thank him for your many blessings.
Hopefully, God will hear all our prayers and grant us a cure.

posted November 7, 2022
View reactions
A MyMyelomaTeam Member

So hard Angela it’s my husband. But I know God is able to do all things.
My sister is doing well and surprisingly ready to go back to work perhaps next month. She will return to her oncologist then.

posted March 19
Which Supplements Or Vitamins Do You Take?
A MyMyelomaTeam Member asked a question 💭
posted February 23, 2022
View reactions
A MyMyelomaTeam Member

B-12, D3, E

posted February 23
Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

posted March 18, 2019
View reactions
A MyMyelomaTeam Member

Recent reports such as the 2022 ASH Conference are suggesting if a person is clonoSEQ MRD Negative at 10 -6 (no cancer per million cells), that after 2 years of a Negative Status, its viable to… read more

posted August 17
I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?
A MyMyelomaTeam Member asked a question 💭

How long does it take for the immune system to rebound?

posted January 14, 2019
View reactions
A MyMyelomaTeam Member

It took me about 5 months. I was able to drive to church. That is most important to me.

I hope you have a quicker recovery. It will be 90 days for bloodwork to be normal.

Best
Susan

posted July 24
I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?
A MyMyelomaTeam Member asked a question 💭
posted June 2, 2019
View reactions
A MyMyelomaTeam Member

It's definitely a slow process getting back, mine was a little year ago I'm not back 100% maybe 85 90 % now but it does get better you have been through a lot hope all goes well for you

posted September 20
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in