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3326 questions
Merry Christmas 🎄 And Happy Holidays!
A MyMyelomaTeam Member asked a question đź’­

I want to thank everyone on this blog for your support, knowledge and friendship! This has been the worst year of my life. But you all helped me get through it. May your prayers be answered and that you enjoy the holiday pain free. Keep the Faith! Merry Christmas with much love Jeff!

A MyMyelomaTeam Member
posted January 8
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

posted April 4
Calcium Supplements
A MyMyelomaTeam Member asked a question đź’­

I just wanted to share with my MM team that I was getting a mild stomach ache daily in the afternoons and knew it was probably one of the supplements I took at noon. After a little research and getting the okay from my oncologist I switched from regular calcium to calcium citrate and no more stomach aches.đź‘Ť If anyone has this same issue see if you can change it did make a difference! Happy Holidays!

A MyMyelomaTeam Member

Ask for more medication.

posted January 4
B-12 Update
A MyMyelomaTeam Member asked a question đź’­

Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸

A MyMyelomaTeam Member

I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more

posted July 9, 2023
How Many Of You Would Chose Treatment Again.
A MyMyelomaTeam Member asked a question đź’­

I’m writing Pro’s and Con’s for treatment. My mother had stage 4 ovarian cancer 3 times. Chemo, cured, reoccurrence, chemo & surgery, reoccurrence. In the end she read her Chemo diary and decided against any further treatment. She did have quality of life in the end.

A MyMyelomaTeam Member

only if I have no other option

posted February 10
Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

Shipmates, 20 months and going strong. Thankful to be alive.

posted April 3
I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?
A MyMyelomaTeam Member asked a question đź’­
A MyMyelomaTeam Member

People check your dates before replying! You may be replying to a five year old question! Granted an old answer may still be helpful to others, however note that it was an older question!

posted January 29
Why Is D3 & K2 Important To Take With Your Calcium Supplement?
A MyMyelomaTeam Member asked a question đź’­

I just read an article about why it's important. It's because D3 helps you to absorb calcium and K2 tells the Calcium where to go! It directs the calcium to the bones instead of the soft tissue, which can cause atherosclerosis and heart attacks. It also activates osteocalcin, which holds calcium to bone. I don't like taking supplements, so I pull my calcium supplements apart and pour them into my yogurt. I hope this helps someone. It has made a huge difference in my osteoarthritis pain and… read more

A MyMyelomaTeam Member

Ask about reducing your blood thinners - it's a healthier solution

posted March 12
Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question đź’­

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

It’s been so long since I’ve taken Dexamethasone I can’t remember how it affected me the only thing I do remember is that it gave me insomnia the night after I took it.

posted March 12
Financial Issues With Multiple Myeloma Treatment Expenses
A MyMyelomaTeam Member asked a question đź’­

A very common concern with newly diagnosed Multiple Myeloma patients
Below is a new Financial Coach Program available at Healthtree.
I have seen various team members struggle with financial issues upon diagnosis of Multiple Myeloma especially if they do not have Medicare or effective healthcare resources. You may want to check out Healthtree as they have a new Multiple Myeloma Financial Coach program. You can use your search engine to locate the Healthtree website. I hope this helps you and… read more

A MyMyelomaTeam Member

Yes @A MyMyelomaTeam Member
On Medicare and Humana and WellCare pharmacy plan. Talk to your oncology team. They go through this every day!

posted November 27, 2023
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