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Anyone Have Severe Hot Flashes And Fatigue? I Am On Revlimid 15mg 2 Weeks On One Off And Dexamethasone 4mg 5 Pills The Two On Weeks.

Anyone Have Severe Hot Flashes And Fatigue? I Am On Revlimid 15mg 2 Weeks On One Off And Dexamethasone 4mg 5 Pills The Two On Weeks.

I am having such terrible hot flashes lately. I have had them all thru menopause but way past that now so do not think it's that. They seem to happen I do notice when feeling a bit of anxiety, but not always. Also extreme fatigue, not tired which seems strange, as the days I take the Dex I wind up with insomnia and for at least 3 days can't sleep then by end of week I can't get out of bed, but when I do I don't know how to sit and relax I wind up keep getting up to do things, which makes the… read more

A MyMyelomaTeam Member said:

Mej thanks for the hug and hope all is well with you.

posted 5 months ago

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.

Thanks
Wordpass22

A MyMyelomaTeam Member said:

👍

posted 15 days ago

If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers

If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers

As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more

A MyMyelomaTeam Member said:

Yes, I have had a root canal aprox 15 years ago. Yes I had a full blown case of shingles aprox 10 years ago

posted 5 months ago

Has Anyone Experienced Pain And Tightness Around The Rib Cage As A Symptom?

Has Anyone Experienced Pain And Tightness Around The Rib Cage As A Symptom?

Almost daily, I have a feeling of tightness around my lower ribs, like someone has a band Around them and keeps tightening it. The area also feels numb. Has anyone elseexperienced this?

A MyMyelomaTeam Member said:

I have tightness like a rubber band more under my breast I can’t wear a bra very long but not numbness.

posted about 2 years ago

SCT

SCT

Hello so I would to hear from any one that had the harvest but waited like a year to have the SCT. I'm wondering how you felt
My thoughts are I felt so tired after I had the harvest I couldn't even imagine how I would have been able to go thought this. And I have heard many say they were sick, tired and it took alot out of them. I'm wondering if someone waited like a year was there body better able to handle it and maybe not have so many side effects
Would love to hear from anyone that did… read more

A MyMyelomaTeam Member said:

Prayers for you Colleen, hoping your tests are all good💜Which chemo are you getting?

posted 4 months ago

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more

A MyMyelomaTeam Member said:

AMEN! EVERYDAY IS A BLESSING!

posted 3 months ago

Revlimid

Revlimid

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

A MyMyelomaTeam Member said:

I think that’s usually the protocol, to be on some type of maintenance chemo until it is no longer effective. There is no long term plan for me to get off the Revlimid unless it becomes ineffective… read more

posted about 1 year ago
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