Hi Jeanette, everyone's answer will be different, I've been in remission for almost 2 year's was unable to take Revilmed due to the side effects, I have chemotherapy twice a month, So hope this helps… read more
B-12, D3, E
Hello all my shipmates,
Please spread the word to all your team shipmates.
Everyday at NOON wherever you are please say a simple prayer.
God, please find a cure for Multiple Myeloma. Amen. Also thank him for your many blessings.
Hopefully, God will hear all our prayers and grant us a cure.
So hard Angela it’s my husband. But I know God is able to do all things.
My sister is doing well and surprisingly ready to go back to work perhaps next month. She will return to her oncologist then.
I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
Yes your body needs the rest it’s 6months for me in remission and you will get tied but you will slowly recover.. My mine wants to go full force but your body will let you know …. And then it takes me… read more
and turmeric! take turmeric supplements or sprinkle it on food ;)
I didn't know where to tell my story. January 24, 2003 I received my stem cell transplant. Today it is 20 years with good health and no medication. I am now 80 years old, I thank God for giving me these years to spend time with my family.
I pray there are others who have had this success.
Please let me know.
Hi NancyGarcia - get a clonoSEQ test (blood based is okay - bmb if you can). If you're MRD Negative at 10 -6 (no cancer per million cells tested), then look at the Case Studies of MRD2STOP and… read more
Just do what your body tells you
I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more
Well, that's why people get clonoSEQ tests - its completely definitive as to how deep of a remission you have. Negative at 10 -6 is a very deep and very durable Complete Remission. Its what getting a… read more