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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
4051 questions

Merry Christmas 🎄 And Happy Holidays!

A MyMyelomaTeam Member asked a question 💭

I want to thank everyone on this blog for your support, knowledge and friendship! This has been the worst year of my life. But you all helped me get through it. May your prayers be answered and that you enjoy the holiday pain free. Keep the Faith! Merry Christmas with much love Jeff!

A MyMyelomaTeam Member
posted January 8

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

posted April 4

Calcium Supplements

A MyMyelomaTeam Member asked a question 💭

I just wanted to share with my MM team that I was getting a mild stomach ache daily in the afternoons and knew it was probably one of the supplements I took at noon. After a little research and getting the okay from my oncologist I switched from regular calcium to calcium citrate and no more stomach aches.👍 If anyone has this same issue see if you can change it did make a difference! Happy Holidays!

A MyMyelomaTeam Member

I just read about a red algae calcium has anyone tried this yet

posted April 29

B-12 Update

A MyMyelomaTeam Member asked a question 💭

Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸

A MyMyelomaTeam Member

I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more

posted July 9, 2023

Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Shipmates, 20 months and going strong. Thankful to be alive.

posted April 3

Does Anyone Take Dexamethasone And Revlimid As Maintence?

A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

A MyMyelomaTeam Member

I'm close to completing induction therapy with Dara/Velcade/Revlimid/dex (began Dec. 1, 2023), and I'm now only taking 4 mg dex on treatment day. With the approval from my oncologist, I reduced down… read more

posted April 28

How Many Of You Would Chose Treatment Again.

A MyMyelomaTeam Member asked a question 💭

I’m writing Pro’s and Con’s for treatment. My mother had stage 4 ovarian cancer 3 times. Chemo, cured, reoccurrence, chemo & surgery, reoccurrence. In the end she read her Chemo diary and decided against any further treatment. She did have quality of life in the end.

A MyMyelomaTeam Member

Iris
I’m so glad your quality of life is so good. That is what is most important. I bought my cemetery plot, revised my Living Trust, and still need to make a list of the most valuable/important… read more

posted June 30

Why Is D3 & K2 Important To Take With Your Calcium Supplement?

A MyMyelomaTeam Member asked a question 💭

I just read an article about why it's important. It's because D3 helps you to absorb calcium and K2 tells the Calcium where to go! It directs the calcium to the bones instead of the soft tissue, which can cause atherosclerosis and heart attacks. It also activates osteocalcin, which holds calcium to bone. I don't like taking supplements, so I pull my calcium supplements apart and pour them into my yogurt. I hope this helps someone. It has made a huge difference in my osteoarthritis pain and… read more

A MyMyelomaTeam Member

@A MyMyelomaTeam Member
Even when you are on blood thinners you can have vitamin K in your diet, you just have to not over do. My son took Vitamin E Complex so he wouldn’t have to take too much… read more

posted June 8

I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

People check your dates before replying! You may be replying to a five year old question! Granted an old answer may still be helpful to others, however note that it was an older question!

posted January 29

I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?

A MyMyelomaTeam Member asked a question 💭

How long does it take for the immune system to rebound?

A MyMyelomaTeam Member

I had mine in 2012, took about a month before I started to feel good, still fighting it going on 12 years. Good luck with yours.

posted January 3
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