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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Which Supplements Or Vitamins Do You Take?

Which Supplements Or Vitamins Do You Take?

posted February 23
Last of 243 replies sign up to view previous answers
A MyMyelomaTeam Member

I take B12. And vitamin D

posted September 13

What Should My Diet Consist Of Foods I Should And Should Not Eat?

What Should My Diet Consist Of Foods I Should And Should Not Eat?

posted January 7, 2019
A MyMyelomaTeam Member

I now eat 'healthy', I'm using a low carbs diet.

posted September 30, 2019

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

posted March 18, 2019
A MyMyelomaTeam Member

I just take what I am told LOL

posted November 6

What Are Your Top Tips For Managing Myeloma In The Summer Heat?

What Are Your Top Tips For Managing Myeloma In The Summer Heat?

posted June 29
Last of 107 replies sign up to view previous answers
A MyMyelomaTeam Member

Drink lots of water stay hydrated. Do not stay in the sun for long periods of time. If I remember correctly some of the medications, we can react with sun light.

posted 2 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted May 5
Last of 205 replies sign up to view previous answers
A MyMyelomaTeam Member

JackBirdsong You are so fortunate that it's that easy for you. I have worked for years to find an answer for fatigue and finally discovered that eating more protein and eating raisins which raise… read more

posted 2 hours ago

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.

Thanks
Wordpass22

posted January 14, 2021
A MyMyelomaTeam Member

I will be getting my second booster soon

posted May 2

Anyone Have Severe Hot Flashes And Fatigue? I Am On Revlimid 15mg 2 Weeks On One Off And Dexamethasone 4mg 5 Pills The Two On Weeks.

Anyone Have Severe Hot Flashes And Fatigue? I Am On Revlimid 15mg 2 Weeks On One Off And Dexamethasone 4mg 5 Pills The Two On Weeks.

I am having such terrible hot flashes lately. I have had them all thru menopause but way past that now so do not think it's that. They seem to happen I do notice when feeling a bit of anxiety, but not always. Also extreme fatigue, not tired which seems strange, as the days I take the Dex I wind up with insomnia and for at least 3 days can't sleep then by end of week I can't get out of bed, but when I do I don't know how to sit and relax I wind up keep getting up to do things, which makes the… read more

posted April 1, 2019
A MyMyelomaTeam Member

God is good all the time 🙏 don't give up 😁

posted May 8

Please Pray For A Cure For Multiple Myeloma.

Please Pray For A Cure For Multiple Myeloma.

Hello all my shipmates,
Please spread the word to all your team shipmates.
Everyday at NOON wherever you are please say a simple prayer.
God, please find a cure for Multiple Myeloma. Amen. Also thank him for your many blessings.
Hopefully, God will hear all our prayers and grant us a cure.

posted November 7
A MyMyelomaTeam Member

Always do for all of us!

posted November 20

New Covid Vaccine

New Covid Vaccine

So today i went for treatment and my Dr asked me why i jad to cancel my last treatment appointment and my appointment down in NYC for my BMB, PET scan, snd and blood work up. I told her i was again exposed to covid. And because my vaccines did not take I am unvaccinated
She told me there is a new vaccine just approved two to three days ago for people like me that the vaccine did not take
Wondering has anyone heard of this?
I had to give blood again. To make sure that i still have no… read more

posted January 14
A MyMyelomaTeam Member

I'm with you. I am not getting the vaccines.

posted April 1

If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers

If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers

As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more

posted October 17, 2019
A MyMyelomaTeam Member

I’ll add that I had shingles after having both types of shingles vaccines years before I developed MM. I had chickenpox as a child. Chickenpox virus never leaves the body. It stays dormant until it… read more

posted July 27
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