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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

AM I RELAPSING?

By A MyMyelomaTeam Member 177 answers

Are You Frustrated With Finding Effective Treatments For Myeloma?

By A MyMyelomaTeam Member 98 answers

How Many People Contracted Multiple Myeloma Since This Covid-19 Pandemic Started?

By A MyMyelomaTeam Member 79 answers

Merry Christmas 🎄 And Happy Holidays!

By A MyMyelomaTeam Member 63 answers
4577 questions

Merry Christmas 🎄 And Happy Holidays!

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

I want to thank everyone on this blog for your support, knowledge and friendship! This has been the worst year of my life. But you all helped me get through it. May your prayers be answered and that you enjoy the holiday pain free. Keep the Faith! Merry Christmas with much love Jeff!

A MyMyelomaTeam Member
January 8

Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.

A MyMyelomaTeam Member asked a question 💭
Aberdeen, NC
A MyMyelomaTeam Member

I do not about cart but I do know it is hard to gett

April 4

Calcium Supplements

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

I just wanted to share with my MM team that I was getting a mild stomach ache daily in the afternoons and knew it was probably one of the supplements I took at noon. After a little research and getting the okay from my oncologist I switched from regular calcium to calcium citrate and no more stomach aches.👍 If anyone has this same issue see if you can change it did make a difference! Happy Holidays!

A MyMyelomaTeam Member

I just read about a red algae calcium has anyone tried this yet

April 29

Why Don’t MM Specialists/Hematologist/Oncologists Give You A Condensed List Of Your Type Of MM?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

Since it’s so hard to understand the reports, it would be nice to have something simple written down that we can understand. I notice that many people don’t even know what type they have.

A MyMyelomaTeam Member

Dan,
He is in your State. I think a second opinion by him is in order.
Paula🌹

September 17

I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?

A MyMyelomaTeam Member asked a question 💭
Chattanooga, TN

How long does it take for the immune system to rebound?

A MyMyelomaTeam Member

For me I never reached remission with initial therapy and age I was 70 so not much time left to be eligible for the autologous stem cell transplant
As far as infections always have a backup plan I… read more

September 15

Have You Ever Prayed “The Litany Of Trust”?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

Don’t let fear take over. There are so many things we fear. Cancer, hurricanes, the election, but this pray helps you let go of fear, and trust in God.

A MyMyelomaTeam Member

Bernice, it is difficult to explain. As I grew older and more aware that my life will eventually come to an end, I gave it way too much thought. Now, I have taken things in stride by being thankful… read more

7 days ago

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?

A MyMyelomaTeam Member asked a question 💭
Portland, OR

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

A MyMyelomaTeam Member

No, Viagra has been demonstrated to be a cause of melanoma - not myeloma. its active ingredient, sildenafil, more recently has been linked to a possible increased risk for melanoma, the most… read more

August 1 (edited)

Has Anyone Gone From Stable To Unstable With MM And Was The Experience Horrible? I've Been Told It Will Happen And When It Does Its Worse

A MyMyelomaTeam Member asked a question 💭
Wetumpka, AL
A MyMyelomaTeam Member

Hi Karen.. Yes, two or three times. Lucky for all of us, new drug discoveries and advancements in all areas of treatment have resulted in stunningly positive results. I am not spiritual, though I do… read more

March 27

B-12 Update

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸

A MyMyelomaTeam Member

I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more

July 9, 2023

Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?

A MyMyelomaTeam Member asked a question 💭
Newfoundland, Canada
A MyMyelomaTeam Member

Shipmates, 20 months and going strong. Thankful to be alive.

April 3