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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question 💭
posted October 31, 2022
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A MyMyelomaTeam Member

Hi Jeanette, everyone's answer will be different, I've been in remission for almost 2 year's was unable to take Revilmed due to the side effects, I have chemotherapy twice a month, So hope this helps… read more

posted May 15
Which Supplements Or Vitamins Do You Take?
A MyMyelomaTeam Member asked a question 💭
posted February 23, 2022
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A MyMyelomaTeam Member

B-12, D3, E

posted February 23
Please Pray For A Cure For Multiple Myeloma.
A MyMyelomaTeam Member asked a question 💭

Hello all my shipmates,
Please spread the word to all your team shipmates.
Everyday at NOON wherever you are please say a simple prayer.
God, please find a cure for Multiple Myeloma. Amen. Also thank him for your many blessings.
Hopefully, God will hear all our prayers and grant us a cure.

posted November 7, 2022
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A MyMyelomaTeam Member

So hard Angela it’s my husband. But I know God is able to do all things.
My sister is doing well and surprisingly ready to go back to work perhaps next month. She will return to her oncologist then.

posted March 19
Does Anyone Take Dexamethasone And Revlimid As Maintence?
A MyMyelomaTeam Member asked a question 💭

I’m really struggling with taking 20 mg of Dexamethasone weekly. It’s 50 degrees here and I’m sweating like I’m in the Caribbean…. Can anyone explain why we need to take all the dex in one day? I wish we could take 1 a day for 5 days…. Thanks in advance for any suggestions…. I have no idea if this will be my maintenance therapy for the rest of my life but it’s not a great maintenance plan for me…

posted November 26, 2022
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A MyMyelomaTeam Member

Well I've been on the dex, Velcade and later added Revlimid10 for awhile...and have been pretty stable...diagnosed in 2015. I guess everyone is different. I've had some side effects from Revlimidread more

posted May 1
Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

posted March 18, 2019
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A MyMyelomaTeam Member

I am on Revlimid for maintenance as well. I didn’t have any diarrhea for about two years later. Then I got Diarrhea pretty bad. I am on Colestipol and taking 2 in morning and 2 at night and diarrhea… read more

posted April 12
I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?
A MyMyelomaTeam Member asked a question 💭
posted June 2, 2019
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A MyMyelomaTeam Member

Yes your body needs the rest it’s 6months for me in remission and you will get tied but you will slowly recover.. My mine wants to go full force but your body will let you know …. And then it takes me… read more

posted 6 days ago
What Should My Diet Consist Of Foods I Should And Should Not Eat?
A MyMyelomaTeam Member asked a question 💭
posted January 7, 2019
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A MyMyelomaTeam Member

and turmeric! take turmeric supplements or sprinkle it on food ;)

posted January 26
Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I didn't know where to tell my story. January 24, 2003 I received my stem cell transplant. Today it is 20 years with good health and no medication. I am now 80 years old, I thank God for giving me these years to spend time with my family.
I pray there are others who have had this success.
Nancy Espy.
Please let me know.

posted January 24
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A MyMyelomaTeam Member

Hi NancyGarcia - get a clonoSEQ test (blood based is okay - bmb if you can). If you're MRD Negative at 10 -6 (no cancer per million cells tested), then look at the Case Studies of MRD2STOP and… read more

posted April 14
What Advice Do You Have For Others About Managing Fatigue?
A MyMyelomaTeam Member asked a question 💭
posted May 5, 2022
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A MyMyelomaTeam Member

Just do what your body tells you

posted December 26, 2022
Revlimid
A MyMyelomaTeam Member asked a question 💭

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

posted June 13, 2019
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A MyMyelomaTeam Member

Well, that's why people get clonoSEQ tests - its completely definitive as to how deep of a remission you have. Negative at 10 -6 is a very deep and very durable Complete Remission. Its what getting a… read more

posted March 21
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