Is Multiple Myeloma Curable? | MyMyelomaTeam

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3537 questions
Is Multiple Myeloma Curable?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!

posted March 17
I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

People check your dates before replying! You may be replying to a five year old question! Granted an old answer may still be helpful to others, however note that it was an older question!

posted January 29
Did Anyone Have Their Teeth Just Crumble And Come Out In Pieces?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I have been having Zometa for 33 months every month for 22 months and then every3 months since I take calcium K2 and D3 as well as collagen every other day and have so far been lucky with my teeth and… read more

posted February 24
I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?
A MyMyelomaTeam Member asked a question 💭

How long does it take for the immune system to rebound?

A MyMyelomaTeam Member

I had mine in 2012, took about a month before I started to feel good, still fighting it going on 12 years. Good luck with yours.

posted January 3
What's One Natural Remedy That's Helped In Managing Your Myeloma?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Got some reading to do, I see! Thank you, Marlo 👍

posted December 22, 2023
How Do You Handle Unsolicited Advice Or Comments About Myeloma?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I smile and thank them, after all, they are trying to be of some 'help'. And you never know if their advice or solution will help. I heard about how Aspercream with Lidocaine was effective for any… read more

posted March 30, 2023
Maintenance Therapy
A MyMyelomaTeam Member asked a question 💭

My oncologist said that I’d be going to 10mg of Revlimid for maintenance therapy. Said I should feel much better. Anyone have firsthand experience??

A MyMyelomaTeam Member

I hear you about the pain killer You know, sometimes ( might be my imagination ), that when I take some things, like over the counter meds or a caffeine tablet, I get a back ache. I know your… read more

posted March 1 (edited)
If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers
A MyMyelomaTeam Member asked a question 💭

As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more

A MyMyelomaTeam Member

I had singles probably 20 years ago and have had several root canals over the past 20 years

posted February 24
How Many Of You Would Chose Treatment Again.
A MyMyelomaTeam Member asked a question 💭

I’m writing Pro’s and Con’s for treatment. My mother had stage 4 ovarian cancer 3 times. Chemo, cured, reoccurrence, chemo & surgery, reoccurrence. In the end she read her Chemo diary and decided against any further treatment. She did have quality of life in the end.

A MyMyelomaTeam Member

only if I have no other option

posted February 10
Did Your Walking (Gait) Change With Myeloma Or MGUS?
A MyMyelomaTeam Member asked a question 💭

When i saw my Oncologist last week I was shuffling instead of walking. It was so embarrassing. I’m only 65. I was an athlete.

A MyMyelomaTeam Member

🙏🏾ing for your healing…but being proactive is a great thing to do- especially when you have options. ..Praise God for options, right ?

Have a blessed evening.
Carla

posted June 9, 2023