I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.
I will have my blood tested to determine if I have Covid antibodies. My doc provided a script.
I am having such terrible hot flashes lately. I have had them all thru menopause but way past that now so do not think it's that. They seem to happen I do notice when feeling a bit of anxiety, but not always. Also extreme fatigue, not tired which seems strange, as the days I take the Dex I wind up with insomnia and for at least 3 days can't sleep then by end of week I can't get out of bed, but when I do I don't know how to sit and relax I wind up keep getting up to do things, which makes the… read more
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