Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.

Thanks
Wordpass22

I Heard That The Covid Vaccine Is Only 50% Affective For MM Patients Because The Necessary Antibodies Are Not Provided. Any Truth To This?

I will have my blood tested to determine if I have Covid antibodies. My doc provided a script.

If You Have Multiple Myeloma, Have You Had A Root Canal Or Shingles. I Need Both Yes And No Answers

As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more

Anyone Have Severe Hot Flashes And Fatigue? I Am On Revlimid 15mg 2 Weeks On One Off And Dexamethasone 4mg 5 Pills The Two On Weeks.

I am having such terrible hot flashes lately. I have had them all thru menopause but way past that now so do not think it's that. They seem to happen I do notice when feeling a bit of anxiety, but not always. Also extreme fatigue, not tired which seems strange, as the days I take the Dex I wind up with insomnia and for at least 3 days can't sleep then by end of week I can't get out of bed, but when I do I don't know how to sit and relax I wind up keep getting up to do things, which makes the… read more

What Treatment Can Anyone Recommend For Neuropathy On My Feet And Toes?

Drugs treatment plan was Revlimid, Velcade, Dexaethasone. I stopped the Velcade once numbness and tingling got worse. I continue now with lower dose of Revlimid and Dexaethasone. The pain in my feet has gotten worse and have tried natural remedies but no relief. Dr prescribed Gabapentin and have taken now for a few weeks but was told it takes longer before I would notice if it’s helping. Had some bad side effects so now taking Lyrica which seems to be helping to take the burning sensation away… read more

I Will Start Velcade Soon. What Can I Expect?

I am close to 94 yrs and will start Velcade next week. Where is it injected and what are the side affects?

Back Pain

So I've heard alot about bone lesions. I'm wondering if someone could tell me what the pain is like.
I have lower back pain for about a month and and today it's like my whole back hurts. It's just pain tho.
I'm not sure if it's from the MM or just pain. I'm still waiting to meet my new Dr on the 20th so I've been unmonitored for 3 months. I will have blood test this week.
I'm just wondering if anyone can tell me how the pain starts.

Revlimid ??? Looking For Input

My husband’s Multiple Myeloma is in remission (thank heavens). Ever since then he’s been prescribed a maintenance dose of a drug called Revlimid manufactured by Celgine Pharmaceuticals. In Jan of every yr., we have to lay $2500. then it’s $780 per month for the 21-day supply. He’s on it 21 days then 7 days off. These amounts represent the out-of-pocket costs after Medicare and a Cadillac supplement. We explored several avenues to no avail. This is a real hardship. Does anyone know of any… read more