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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Which Supplements Or Vitamins Do You Take?
A MyMyelomaTeam Member asked a question 💭
posted February 23, 2022
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A MyMyelomaTeam Member

B-12, D3, E

posted February 23
What Advice Do You Have For Others About Managing Fatigue?
A MyMyelomaTeam Member asked a question 💭
posted May 5, 2022
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A MyMyelomaTeam Member

Just do what your body tells you

posted December 26, 2022
What's The Most Important Thing You Learned About Living With Myeloma This Past Year?
A MyMyelomaTeam Member asked a question 💭
posted December 28, 2022
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A MyMyelomaTeam Member

Do the best you can with everyday. God gives us time to reflect on what is important. Let go of any hatred towards ourselves and others and make life easier for the people who care about us. Because… read more

posted 6 hours ago
What Are Your Top Tips For Managing Myeloma In The Summer Heat?
A MyMyelomaTeam Member asked a question 💭
posted June 29, 2022
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A MyMyelomaTeam Member

Drink lots of water stay hydrated. Do not stay in the sun for long periods of time. If I remember correctly some of the medications, we can react with sun light.

posted November 30, 2022
What's One Thing About Myeloma You Feel Isn't Talked About Enough?
A MyMyelomaTeam Member asked a question 💭
posted February 22
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A MyMyelomaTeam Member

Linda it’s sad that your husband is so bitter but he has been through a lot so hopefully over time he learns too accept his new normal because worrying about the things you can’t change is a recipe… read more

posted 1 day ago
What Do You Look Forward To Accomplishing In 2023?
A MyMyelomaTeam Member asked a question 💭
posted January 25
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A MyMyelomaTeam Member

Peace and healthy and I am in Gods Hands Amen 🙏🏻

posted March 19
Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
A MyMyelomaTeam Member asked a question 💭

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

posted May 28, 2020
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A MyMyelomaTeam Member

Bistol Meyers has a foundation to help members obtain Revlimid and once you aply on a one sheet form, they will look into approving you. call (Phone number can only be seen by the question andread more

posted March 15
How Do You Handle Unsolicited Advice Or Comments About Myeloma?
A MyMyelomaTeam Member asked a question 💭
posted October 26, 2022
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A MyMyelomaTeam Member

Just say thanks. You never know someone might have some good advise.

posted January 30
Maintenance Therapy After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

posted March 18, 2019
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A MyMyelomaTeam Member
posted February 22
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
A MyMyelomaTeam Member asked a question 💭
posted October 31, 2022
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A MyMyelomaTeam Member

Yes'm xo

posted 2 days ago
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