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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My husband is now on maintenance and has not taken his Revlimid for 10 days. Chemo since 3.5 weeks ago and no steroids. He feels great

A MyMyelomaTeam Member asked a question 💭
ckalahiki811@gmail.com
October 17 (edited)
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A MyMyelomaTeam Member

When you say he’s on Maintenance, is he continuing to take Any MM Meds?

Our routine Labs can only tell us so much.

The clonoSEQ Blood Test can definitively tell you if he’s in Complete Remission with a MRD Negative status of 10 -6 (none per million cells tested).

If he’s Negative to 10 -6, then a Monitoring Protocol with Monthly Labs (at least Quarterly) and Quarterly clonoSEQ Blood Sample Tests can be a reliable method to Live with MM without MM Meds.

See the site clonoSEQ.com for details.

October 17
MyMyelomaTeam

It's wonderful to hear your husband is feeling so much better — no cane and great legs sounds like a real win worth celebrating! 🎉

However, feeling great doesn't necessarily mean myeloma is cured. Myeloma is currently considered a manageable condition rather than a curable one, and maintenance therapy plays a really Show Full Answer

It's wonderful to hear your husband is feeling so much better — no cane and great legs sounds like a real win worth celebrating! 🎉

However, feeling great doesn't necessarily mean myeloma is cured. Myeloma is currently considered a manageable condition rather than a curable one, and maintenance therapy plays a really important role in keeping it that way. Maintenance therapy with Revlimid is the current standard of care after transplant for a very important reason — studies show it can keep myeloma in remission for around 57 months, compared to about 30 months without it.

Missing doses for 10 days is something his oncologist needs to know about right away. Here's why it matters:

- Stopping without medical guidance could allow myeloma cells to become active again
- His doctor may need to assess whether to restart at the same dose or adjust it
- If side effects caused the break, there are options like dose reductions that many people find helpful Please encourage him to contact his care team today. The goal of maintenance is to protect that wonderful feeling he has right now — for as long as possible!

October 17

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