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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 24
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Back Pain and Myeloma: What It Feels Like Read Article...
A MyMyelomaTeam Member

I bought a gel mattress to help relieve pressure points, and use a pillow between my knee’s when I sleep. I pretty much hurt everywhere, but I’ve learned to compartmentalize that pain, and not let it ruin my day to day. It’s mentally exhausting to keep pain at bay, but if I didn’t have that in my tool box, I’m not sure if I’d manage without pain medication. I use a muscle relaxer if needed, and take Pregablin twice daily for nerve pain.

August 31
MyMyelomaTeam

That "picture frame" pattern of pain — running across the neck, down both sides, and across the lower back — sounds really exhausting to live with daily. Back pain is very common with myeloma, and there are several reasons it can show up this way, including bone lesions, vertebral fractures, or pressure on spinal nerves.

Show Full Answer

That "picture frame" pattern of pain — running across the neck, down both sides, and across the lower back — sounds really exhausting to live with daily. Back pain is very common with myeloma, and there are several reasons it can show up this way, including bone lesions, vertebral fractures, or pressure on spinal nerves.

The good news is there are options that may help. Here's a summary of what doctors can offer:

Medical treatments:
- Bone-strengthening medications (bisphosphonates or denosumab) to help protect bones
- Radiation therapy to target specific lesions pressing on nerves
- A back brace to stabilize the spine and reduce pressure
- Prescribed pain medications, including opioids if pain is severe (with careful monitoring)
- Surgical options like kyphoplasty for vertebral fractures

Important caution: Avoid over-the-counter pain relievers like ibuprofen or aspirin without checking with your oncology team first — they can interfere with myeloma treatments. Alongside medical treatment, complementary therapies may also ease daily pain:

- Physical therapy — one MyMyelomaTeam member said it gave them "what I needed to walk again"
- Heating pads or ice packs for temporary relief
- Acupuncture or acupressure
- Gentle yoga or meditation
- Medical massage
- Adjusting sleep position or bed angle

Bringing a detailed description of this pain pattern — including when it's worse and what helps — to your care team is really important. The more specific you can be, the better they can tailor a plan for you.

August 24

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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what