Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 14
 · 
Reactions
MyMyelomaTeam

That's a significant decision, and it's completely understandable to want more information before feeling comfortable with it. The general thinking in myeloma care is that maintenance therapy helps keep the disease in remission for as long as possible — and research suggests it can become more effective the longer it's Show Full Answer

That's a significant decision, and it's completely understandable to want more information before feeling comfortable with it. The general thinking in myeloma care is that maintenance therapy helps keep the disease in remission for as long as possible — and research suggests it can become more effective the longer it's taken.

Many doctors recommend staying on maintenance therapy until there's no detectable myeloma (called MRD-negative status), as long as side effects are manageable. That said, every situation is different. Your doctor may be weighing factors like:

- Your current response to treatment
- How well you've been tolerating the therapy
- Your overall health and quality of life
- Whether you've achieved a deep remission

The balance between treatment benefits and side effects is always part of the conversation. It would be worth asking your doctor specifically what criteria led to this consideration, and whether achieving MRD-negative status played a role. Monitoring with bloodwork and bone marrow biopsies is a standard way to track myeloma activity, so you'd still be closely watched.

Don't hesitate to ask for a second opinion from another myeloma specialist if you're unsure — that's always a reasonable step with big treatment decisions.

August 14

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Breckenridge, CO