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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was just diagnosed with IgM multiple myeloma. I was wondering if anyone else has this rare type of multiple myeloma.

A MyMyelomaTeam Member asked a question 💭
Benson, AZ

I was diagnosed with left breast cancer in February 2026 and had 2 lumpectomy in a 3 month period and cancer not removed. Hospitalized for acute kidney injury after second lumpectomy. Fired 2 oncologist because no one wanted to find out why suddenly I had abnormal Calciums. Primary care provider helped manage my labs and gave me fluids for hydration for the last 3 months. Finally found an oncologist who helped me by doing labs and tests since May 2026. I was diagnosed with IgM multiple myeloma… read more

August 8
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MyMyelomaTeam

What a journey you've been through — and what a testament to your strength and professional expertise in advocating for yourself so effectively. Using your case management skills to navigate your own care is truly remarkable.

IgM multiple myeloma is indeed one of the rarer forms of myeloma. Most myeloma cases are IgG Show Full Answer

What a journey you've been through — and what a testament to your strength and professional expertise in advocating for yourself so effectively. Using your case management skills to navigate your own care is truly remarkable.

IgM multiple myeloma is indeed one of the rarer forms of myeloma. Most myeloma cases are IgG (about two-thirds of all cases), with IgA being the next most common. IgM, IgD, and IgE myelomas are significantly less common. Because IgM myeloma is rare, connecting with others who share this specific diagnosis can feel isolating. However, MyMyelomaTeam has over 25,000 members, and posting about your specific IgM diagnosis in the community could help you find others in a similar situation.

Your abnormal calcium levels (hypercalcemia) are a recognized feature of myeloma, which makes it even more frustrating that it took so long for someone to connect the dots. It's a good thing you kept pushing. As you move into treatment, here are a few things worth keeping in mind:

- Stay on top of kidney function monitoring — kidney complications are a known concern with myeloma, and you've already experienced this firsthand
- Keep all your specialists communicating — which, given your background, you're already doing brilliantly
- Ask your oncologist about clinical trials — given the rarity of IgM myeloma, trials may offer additional options
- Maintain regular follow-up labs — tracking your M protein and calcium levels will be key

You clearly know how to fight for the right care. Wishing you strength as treatment begins! 💪

August 8

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